tag:blogger.com,1999:blog-69321868884658099002024-03-14T11:49:27.024-07:00Jett's Flight PlanThis is for all my friends and family to follow my amazing life. Mommy and Daddy have a blog of their own, but I wanted to talk about all my accomplishments as I see them through my eyes.Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.comBlogger61125tag:blogger.com,1999:blog-6932186888465809900.post-91621476716073904872014-08-06T15:47:00.000-07:002014-08-06T15:48:50.362-07:00Almost a year!!!<div class="separator" style="clear: both; text-align: center;">
<span style="text-align: -webkit-auto;">WOW!!! Where does time go? Its been almost a year since I posted on here last. I have grown up so much, I almost forgot how to type. If I typed everything that happened in the last year I think my hands would fall off, so I'll just tell you about what has most recently happened. And since my hands aren't very good at typing anymore, I'll tell you through pictures.</span></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioZoHTmQQBZfZcPXAGzkH7707lFUxyd6K3OmZC_VMUae6mEXQJ-u4ztsjGwm6Wjlt_zwpGAJWu0cgzyBEibWhz28QAwmXJg8Ygspx0G_lS0DC4zsIJPD8Jck4L_LEe6ZSlNOnyUUdjM7s/s1600/IMG_6763.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioZoHTmQQBZfZcPXAGzkH7707lFUxyd6K3OmZC_VMUae6mEXQJ-u4ztsjGwm6Wjlt_zwpGAJWu0cgzyBEibWhz28QAwmXJg8Ygspx0G_lS0DC4zsIJPD8Jck4L_LEe6ZSlNOnyUUdjM7s/s1600/IMG_6763.jpg" height="320" width="215" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">See I told ya I was getting big. I learned how to drive a boat</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUmVp5d6TWsWLKHuanDb9wmu5i_2BOHycTmBNNYsZAOOMS6x1OUnDxzWs2whwHNWxls__1hnL1HaLKHwKyjkBrAd5Luia4ovWVNnuPfea-xf7QT-mwqmFFQ5DTHJiFPNk2V-vZ3X1SZFA/s1600/IMG_6912.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUmVp5d6TWsWLKHuanDb9wmu5i_2BOHycTmBNNYsZAOOMS6x1OUnDxzWs2whwHNWxls__1hnL1HaLKHwKyjkBrAd5Luia4ovWVNnuPfea-xf7QT-mwqmFFQ5DTHJiFPNk2V-vZ3X1SZFA/s1600/IMG_6912.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I got to go to the college homerun derby for the 4th of July with my friend Molly</td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgU_LS0M6U3nm8ltPdZPndsCWxZENREZGGQpn3uBdFrG-WINeBePirlnLG3sy3pN2De3Gfu0VBOm2dYZmTv1DupdelzQB270cLg8x_JBJzMgPzIR8I_JtpVjFTMxKE6JF1xMKBx8o2soOU/s1600/IMG_6923.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgU_LS0M6U3nm8ltPdZPndsCWxZENREZGGQpn3uBdFrG-WINeBePirlnLG3sy3pN2De3Gfu0VBOm2dYZmTv1DupdelzQB270cLg8x_JBJzMgPzIR8I_JtpVjFTMxKE6JF1xMKBx8o2soOU/s1600/IMG_6923.JPG" height="240" width="320" /></a></div>
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<tr><td class="tr-caption" style="text-align: center;">After all the homeruns they lit of really bright things called fireworks. I didn't like them last year because they were so loud, but I came prepared with ear cover thingys this year</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">I love to do art projects, especially when I get messy!!!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgW728ybKc5LizysURUCIQFKacLuFd_xqXQ6X1I4F8G3E2iYkW8YFMe39jLwOUDbGGbW3qsrAc_BbUxEn61VorZoUoTdFQmBqUb-2tcjYB_N0sqVkT3dfAfY1GDrRqnu4TgYziI0cdoe60/s1600/IMG_7113.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgW728ybKc5LizysURUCIQFKacLuFd_xqXQ6X1I4F8G3E2iYkW8YFMe39jLwOUDbGGbW3qsrAc_BbUxEn61VorZoUoTdFQmBqUb-2tcjYB_N0sqVkT3dfAfY1GDrRqnu4TgYziI0cdoe60/s1600/IMG_7113.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I got to travel to the Dominican Republic this year with my daddy and his friends. So while they were there doing work, I had play the part back home!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhB6qHaLY8tk4ZxpRRK_6KC-C27EhzHJpujSuM5LhEEkhNDy0_0ESrXIKUm5ZHc2SFBCFYLPeTBinZh3J0mDXTPyXKHHOOpCfVCyTD3XyCz1Q5tg1Q5Jn4TWzI1GOeD5QDzVnvSkOSUJVg/s1600/IMG_7139.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhB6qHaLY8tk4ZxpRRK_6KC-C27EhzHJpujSuM5LhEEkhNDy0_0ESrXIKUm5ZHc2SFBCFYLPeTBinZh3J0mDXTPyXKHHOOpCfVCyTD3XyCz1Q5tg1Q5Jn4TWzI1GOeD5QDzVnvSkOSUJVg/s1600/IMG_7139.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Here they are in the DR</td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm003UgVSJ48zNeWl9noJXTwrdj0WBjMbh6v6VmZeCwV3I7JhzV9DQ4_3bR8b4l_3ccy6EpUJy-bgoFshSdxZhP3LZ9_Ls52NEC2x5VCHZSzMNEvTjPdcFkhEY5HcarWYZ7Y_-_7QdeNA/s1600/IMG_7144.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm003UgVSJ48zNeWl9noJXTwrdj0WBjMbh6v6VmZeCwV3I7JhzV9DQ4_3bR8b4l_3ccy6EpUJy-bgoFshSdxZhP3LZ9_Ls52NEC2x5VCHZSzMNEvTjPdcFkhEY5HcarWYZ7Y_-_7QdeNA/s1600/IMG_7144.JPG" height="240" width="320" /></a></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCxDyHa2a540lJePIynHoI4SK7ykQNq0pv5xLT6w3sKerOzRQu-AcgoCOXQ6bsETzye4Um5wPyf8odomy-y9bYM6hWvz4EiTaoXBsd7uVvawJj9ghj5HNVgAxZjFdF15L8g6Djj1BkiLg/s1600/IMG_7166.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCxDyHa2a540lJePIynHoI4SK7ykQNq0pv5xLT6w3sKerOzRQu-AcgoCOXQ6bsETzye4Um5wPyf8odomy-y9bYM6hWvz4EiTaoXBsd7uVvawJj9ghj5HNVgAxZjFdF15L8g6Djj1BkiLg/s1600/IMG_7166.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">With the help of my ear cover thingys, I looovveeddd the Air show. There were so many cool airplanes named after me (Jett) that I decided I want to fly in one some day!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzkOpGthHRqNokvIN7e_VlmCjjATGQMW9JESQ4KlOJkUpq2IjMxhr32GvsSwxRl8he4SsWyJ2n2GhkRYooHItbe5WnYIQ7sYyKXNY2UskETPJMgvO7OuNWiOa1cIxK5s_hnPCAyMjFA64/s1600/IMG_7218.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzkOpGthHRqNokvIN7e_VlmCjjATGQMW9JESQ4KlOJkUpq2IjMxhr32GvsSwxRl8he4SsWyJ2n2GhkRYooHItbe5WnYIQ7sYyKXNY2UskETPJMgvO7OuNWiOa1cIxK5s_hnPCAyMjFA64/s1600/IMG_7218.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I got a new piece of equipment a few months back. It helps me stand up. Today I discovered how fun it is to play with beans while I'm standing up. Oh, and there is my best friend tigger</td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiITX32PM7ajdPF7kEbhXp29dXWhkfFhzqY4H0lMZfL0QQ9KSjsNyX7S7Bon64cHUEh7rtteL73Hm-ZH9dSfQt1D78qPPAlopPdS3nEjD1s8Q_WSAPFfYhR7Rr8_heRdPdsgwWNqx02wFo/s1600/IMG_7235.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiITX32PM7ajdPF7kEbhXp29dXWhkfFhzqY4H0lMZfL0QQ9KSjsNyX7S7Bon64cHUEh7rtteL73Hm-ZH9dSfQt1D78qPPAlopPdS3nEjD1s8Q_WSAPFfYhR7Rr8_heRdPdsgwWNqx02wFo/s1600/IMG_7235.jpg" height="320" width="240" /></a></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTfqWILXLR7lP8IhACk1oQobCLLJaUPWbzgfbYvERWDDJCS7_ixuXUFL3lNRFzkt3AmSB0EcabsbFr6cRG9mBW_jpe5jEjDxYVztbQ-tIiWaqrNNL95mcGuSWz7IckTPygq9R0D7NbJfc/s1600/IMG_7222.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTfqWILXLR7lP8IhACk1oQobCLLJaUPWbzgfbYvERWDDJCS7_ixuXUFL3lNRFzkt3AmSB0EcabsbFr6cRG9mBW_jpe5jEjDxYVztbQ-tIiWaqrNNL95mcGuSWz7IckTPygq9R0D7NbJfc/s1600/IMG_7222.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I hadn't been to the hospital in over a year, so when grandma and grandpa came to hang out in July, I thought that would be a good time to make an appearance. (don't worry, nothing big. I just wanted to say hi to some old friends there)</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdaWeNWXPhnLLRKslphig9UDK7UzBU8UmUt39BRbqJzWsGRbA93fYMhX7G8oef1Bzbm0xk5Am2RCh2-f5LSuS7Pp2ftAjPbh3UM75dLYU_gbP785DyPr2LnggLwVJHjGkUSVU6EDfFgTY/s1600/IMG_7323.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdaWeNWXPhnLLRKslphig9UDK7UzBU8UmUt39BRbqJzWsGRbA93fYMhX7G8oef1Bzbm0xk5Am2RCh2-f5LSuS7Pp2ftAjPbh3UM75dLYU_gbP785DyPr2LnggLwVJHjGkUSVU6EDfFgTY/s1600/IMG_7323.JPG" height="320" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I got to point out the funny monkey butts when I went to the zoo… I think they need to wear pants!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgu5nwsCmY02rEUAESvuag6x2guTOvr9gOyvmb5G1F4Ln9nJyMzPoGuAzPpt6NgYuZitkrN_C1ko8-4vd2m6CafBH5AbbWOgtNF0PFWcE6KMpxwfnVU_lICG6aH0LdpyjfW5Ln0TbF1-Gw/s1600/IMG_7332.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgu5nwsCmY02rEUAESvuag6x2guTOvr9gOyvmb5G1F4Ln9nJyMzPoGuAzPpt6NgYuZitkrN_C1ko8-4vd2m6CafBH5AbbWOgtNF0PFWcE6KMpxwfnVU_lICG6aH0LdpyjfW5Ln0TbF1-Gw/s1600/IMG_7332.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">After all that I need a nap</td></tr>
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On top of all those pictures, I thought you would enjoy these videos too:<br />
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This sqealing I do is my parents favorite sound in the world. I've been doing it a lot likely because they told me that they love hearing me happy. My daddy told me all about airplanes and he promised to take me in a real one some day, but this is pretty dang fun in the mean time!<br />
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Sorry about being almost naked… but thats just how I fly!</div>
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Lastly, I kind of learned how to chew things. M & D have been giving me some yummy things lately and I'm trying to enjoy them. As you can see here, when I realize that dad gave me a yummy treat I get pretty happy, and I even chewed it until it was gone. I was pretty proud of myself.</div>
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I hope everyone is doing ok. M & D tell me that we only have 9 months left here in Nebraska before we move back to Utah. I don't remember what Utah is like but if its half as good as Nebraska I'm excited.<br />
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<br />Cody and Tennillehttp://www.blogger.com/profile/01222898975891108821noreply@blogger.com2tag:blogger.com,1999:blog-6932186888465809900.post-70256713295310863752013-11-10T19:24:00.001-08:002013-11-10T19:47:07.948-08:00Where do I start<div class="separator" style="clear: both; text-align: center;">
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Wow, I had such a fun summer. I never visited the hospital once (I need to learn how to knock on wood) and have felt really good all summer. Now that its starting to get cold here in Omaha I'm a little worried that I may get sick, but hopefully I won't ever get as sick as I did last winter. A year ago from now, I could have never imagined that life could be so fun. I'm so happy that I am able to grow with all my friends (you guys) so you can see how awesome my life is!<br />
I was soooo busy the last few months that I never even got a chance to come on here and tell all you guys about it. I actually got to travel a little bit myself… turns out its really fun!!! I went on 2 REALLY long car rides and tried to behave so M & D would want to take me on more. Since I don't even know where to start, I'll just jump right in.<br />
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Lake of the Ozarks-<br />
My very first road trip. It was about a 5 hour drive from home, but luckily I had my new comfortable car seat and was happy for most of the drive. I went down there with some of M & D friends so we could ride on a boat and watch people get towed behind it. Some people are crazy! Why would you want to get towed behind a moving vehicle??? I was perfectly happy just sitting in the boat watching, but then I got a to go swimming and that was AWESOME, I loved it. <br />
We stayed in a house right on the lake, it was sooo cool. I want to live by a lake someday because I really like to stick my toes in the water, and hopefully I can skip rocks on the water like daddy someday.<br />
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<a href="http://2.bp.blogspot.com/-ubfQj8wTHCU/Un5WTPxWCaI/AAAAAAAAAXk/Vx5TFN4p3nY/s1600/IMG_1245.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="196" src="http://2.bp.blogspot.com/-ubfQj8wTHCU/Un5WTPxWCaI/AAAAAAAAAXk/Vx5TFN4p3nY/s320/IMG_1245.JPG" width="320" /></a></div>
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<tr><td class="tr-caption" style="text-align: center;">I love being on a boat</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">We all got to relax and sleep a lot</td></tr>
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My new toy-</div>
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Daddy built me a really cool new toy. He built me a color changing LED light board that can flip down over my crib. I love looking at lights, it helps me relax so I really LOVE this.</div>
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<a href="http://3.bp.blogspot.com/-MBkfPSv0xpE/Un5YcCBSmsI/AAAAAAAAAYE/BSantADD7L4/s1600/lightboard.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="http://3.bp.blogspot.com/-MBkfPSv0xpE/Un5YcCBSmsI/AAAAAAAAAYE/BSantADD7L4/s320/lightboard.jpg" width="320" /></a></div>
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Hanging out with family-</div>
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I was so lucky to see so many of my grandmas, grandpas, and cousins this summer. I never get to see my cousins, so it was really fun to play with all of them. First, almost my entire daddy's side of the family came to Omaha for a family vacation. I got to hang out with my cousins and aunts/uncles for an entire week. We did so many fun things, I wish they could come back and play again. Some of the fun things were:</div>
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- All of us kids had to complete 12 challenges together, each challenge completed we earned a golden ticket. Once we had 12 golden tickets we all got a cool prize. </div>
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-boating at Fremont Lake - again, crazy people that like to get towed behind a moving vehicle… I don't understand this!</div>
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-Strategic Air command museum-I love airplanes and since they canceled the air show this year this was a good substitute</div>
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- Hanging out with so many people that love and adore me was my favorite part</div>
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<a href="http://3.bp.blogspot.com/-dzK5cYjMWt8/Un5al2nL5xI/AAAAAAAAAYs/_0IFjYvJcxg/s1600/family1.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="http://3.bp.blogspot.com/-dzK5cYjMWt8/Un5al2nL5xI/AAAAAAAAAYs/_0IFjYvJcxg/s320/family1.jpg" width="240" /></a></div>
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<a href="http://3.bp.blogspot.com/-Nk_9dIL7hC0/Un5al-ST1qI/AAAAAAAAAYQ/9C6VcQ2Kh8M/s1600/family3.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="http://3.bp.blogspot.com/-Nk_9dIL7hC0/Un5al-ST1qI/AAAAAAAAAYQ/9C6VcQ2Kh8M/s1600/family3.jpg" /></a></div>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-Efe3-g-vi9M/Un5ba5691RI/AAAAAAAAAZA/X4XBvwZc7yU/s1600/IMG_1286.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" height="320" src="http://1.bp.blogspot.com/-Efe3-g-vi9M/Un5ba5691RI/AAAAAAAAAZA/X4XBvwZc7yU/s320/IMG_1286.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I'm not sure what they mean, but all the adults thought they were funny</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-9zKyPDzwg08/Un5dwpofc3I/AAAAAAAAAZk/yYsOnlLaZQk/s1600/IMG_4238.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://4.bp.blogspot.com/-9zKyPDzwg08/Un5dwpofc3I/AAAAAAAAAZk/yYsOnlLaZQk/s320/IMG_4238.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Here are me and cousin Eddie… get it, Cousin Eddie? (Griswold- family vacation)</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-U4b5t7Jn_5o/Un5amtNvIcI/AAAAAAAAAYk/3NEdJb4_ca0/s1600/family5.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" src="http://4.bp.blogspot.com/-U4b5t7Jn_5o/Un5amtNvIcI/AAAAAAAAAYk/3NEdJb4_ca0/s320/family5.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">These shirts were the cool prizes that we earned with our golden tickets</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-XIytoUoS3rs/Un5a34uXPJI/AAAAAAAAAY4/qHPXpqOJaK0/s1600/family6.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="215" src="http://4.bp.blogspot.com/-XIytoUoS3rs/Un5a34uXPJI/AAAAAAAAAY4/qHPXpqOJaK0/s320/family6.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I even earned my very own golden ticket</td></tr>
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Next Mommies parents came to town to hang out. I always get spoiled when they come. </div>
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<a href="http://2.bp.blogspot.com/-40ggAxn3q_4/Un5cz7yTBaI/AAAAAAAAAZM/wcxAjSPJfhc/s1600/ray1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-40ggAxn3q_4/Un5cz7yTBaI/AAAAAAAAAZM/wcxAjSPJfhc/s1600/ray1.jpg" /></a></div>
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New car and carseat-</div>
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I don't think I told you about my new car/carseat that allows me to ride in the car for longer than 30 minutes. Well I got a big boy car seat that lets me look outside of the car. It is so much better. I can sit semi comfortably for long periods of time. To accommodate my new carseat and new wheelchair we had to sell the toaster car and get something bigger. We got a nice shiny new big car that can fit all of my equipment, it is awesome.</div>
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<a href="http://4.bp.blogspot.com/-qB79G-TIT-Y/Un5dubbToBI/AAAAAAAAAZc/Jocyuaaq3wg/s1600/IMG_1306.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://4.bp.blogspot.com/-qB79G-TIT-Y/Un5dubbToBI/AAAAAAAAAZc/Jocyuaaq3wg/s320/IMG_1306.jpg" width="240" /></a></div>
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-Weird Al concert</div>
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Daddy made sure, that given the opportunity, I wouldn't miss a Weird Al concert. I was feeling up to it and ready for an adventure, so I joined him and his friend Kevin for a guys night out with Weird Al. The concert was pretty cool. Crazy lights and loud noises everywhere! Daddy said it was normal, but there were people dressed up like space men (star wars) green aliens (yoda) Amish people, and other crazy costumes. Daddy and Kevin said that it was more like a dungeons and dragons conference then a concert, but maybe thats why it is so entertaining to them. Anyway, I could only handle the awesomeness for a few songs before mommy had to come pick me up. Luckily, Daddy still let me "Meet" Weird Al by getting him to sign a Jett Powered shirt. </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1xBcMqAFO7iyHKMY3cVhgd8LJbCO2GMkzLlj5mVntl67-YGLO4jRETPQebp3At2YjBsRNfN1lHVDKBfsOoTa-Bbiu1Afqsvgjimqky5jNFZnnjdOmknmZcOm4BoSyZKOxedOcn0l3VkQ/s1600/IMG_1211.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1xBcMqAFO7iyHKMY3cVhgd8LJbCO2GMkzLlj5mVntl67-YGLO4jRETPQebp3At2YjBsRNfN1lHVDKBfsOoTa-Bbiu1Afqsvgjimqky5jNFZnnjdOmknmZcOm4BoSyZKOxedOcn0l3VkQ/s320/IMG_1211.jpg" width="320" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhF9KboFPBSnENAaqiMyoN9u9ibb7gQpnCB1nV0hQb6E0dnXAyUnlx012B-3Hi9b9U-uG16UIO5_ygGyEve09h3WAZ1CFnAZrtEHZ10Xa6EeN_uT04tGqsp4j88xBUqBl82EGj3v25e0JU/s1600/IMG_1215.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhF9KboFPBSnENAaqiMyoN9u9ibb7gQpnCB1nV0hQb6E0dnXAyUnlx012B-3Hi9b9U-uG16UIO5_ygGyEve09h3WAZ1CFnAZrtEHZ10Xa6EeN_uT04tGqsp4j88xBUqBl82EGj3v25e0JU/s320/IMG_1215.jpg" width="240" /></a></div>
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<tr><td class="tr-caption" style="text-align: center;">Did you know that accordion used to belong to daddy?<br />
Seriously, he sold it to Weird al!!!</td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj333ZBy7RhyphenhyphenRGw7EeYEYrrbz8XS46FGKhshb2CkM0-sIMkYWIXo9jIs5ERvnh_WRv7r2VFBZLN716D9HnCi1zbtE233yRgYULt6PtRqnXg260ggiCOi0_ltXPebZDRF7WT6YaurUkxaOA/s1600/IMG_1236.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj333ZBy7RhyphenhyphenRGw7EeYEYrrbz8XS46FGKhshb2CkM0-sIMkYWIXo9jIs5ERvnh_WRv7r2VFBZLN716D9HnCi1zbtE233yRgYULt6PtRqnXg260ggiCOi0_ltXPebZDRF7WT6YaurUkxaOA/s320/IMG_1236.jpg" width="240" /></a></div>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1A6YHy_ZxDjRmNfXygYrUaVfHEITDxcfJb66Gfrc3_g5agXP4k9B7fkaRoiU8ucRLfkCSJluRj00WzKw6CFWFL7DAXiEabUIFItNiYlONnDS_Pg1Xp8NltQIEwCoSDdmtekeFjO3Rc7Y/s1600/IMG_1237.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1A6YHy_ZxDjRmNfXygYrUaVfHEITDxcfJb66Gfrc3_g5agXP4k9B7fkaRoiU8ucRLfkCSJluRj00WzKw6CFWFL7DAXiEabUIFItNiYlONnDS_Pg1Xp8NltQIEwCoSDdmtekeFjO3Rc7Y/s320/IMG_1237.jpg" width="320" /></a><br />
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Jett Powered Dance Workshop in Utah- Shortly after Mommy and Daddy launched the Jett Powered Foundation, one of Mommy's friends contacted her about raising money for it. Randi Carter, who Mommy used to dance with in college, wanted to set up a dance workshop in Utah. She worked very hard putting together the schedule, recruiting professional instructors, and advertising for the event. Mommy really wishes she could have gone to the event, but alas, she had to stay here in Omaha with me. We hear it went really well, however. The kids wore bright blue Jett t-shirts as they learned and performed various dances. Randi was so nice to put this together and made sure to tell everyone about me! Besides learning how to become better dancers, the kids learned to be grateful for their healthy bodies and learned that some kids, like me, aren't born with healthy bodies. They worked hard and danced for ME that day and I could feel it. Mommy says I smiled the whole day the workshop was going on. Thanks so much Randi! She successfully raised $600 for the Jett Powered Foundation.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4IkMxKp45bUo2oCLAoGFOVAgYItOnhPRT-r1KAvdWLz5ht4OZs2cuPAT5zmClrgPDVtba9bp2x26lybMKLiIsqbviq-Uq5aXIGo3zQrxcaos9_j0PXKKDQkXeQRMysJiTC6j9c4A2R6g/s1600/Danceworkshop.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4IkMxKp45bUo2oCLAoGFOVAgYItOnhPRT-r1KAvdWLz5ht4OZs2cuPAT5zmClrgPDVtba9bp2x26lybMKLiIsqbviq-Uq5aXIGo3zQrxcaos9_j0PXKKDQkXeQRMysJiTC6j9c4A2R6g/s320/Danceworkshop.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Randi is in the middle with her two sons and is surrounded by a few of the participants and instructors</td></tr>
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-Chicago</div>
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Since I did so awesome driving to the Ozarks earlier in the summer M & D decided they would try and take me to Chicago over Daddies fall break. My friend Norah, who also has PCH, was going to be at her grandparents house in Chicago that week so we all wanted to go meet her and her family. Also, M & D 's friends Jason, Becky and Harvey came out and met us there to hang out. It was such a fun couple days. We did so many AWESOME things. We drove around chicago in a boat and saw all the cool HUGE buildings, we ate pizza and hot dogs, went to an old baseball field, went up a really really tall building (sears tower) and saw the entire city (my feeding tube came out and leaked all over when we were in the "skybridge", so I left a nice mess of my "food" all over the glass floor… Whoops!!!) And then I finally got to meet my lifelong buddy Norah. She is a few months older than me, but I've always liked older women anyway, so it was no big deal. She was cuter than I ever expected (actually M & D say we kind of look alike). It was so fun to see someone else like me. We laid on the floor together, played with stuff animals, she taught me how to knock down a tower of blocks, Norah showed me her feeding tube and I shower her mine it was awesome!</div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhU6PXolZQeXjY9uFGFbfaQpXjDKbssHr0-83JpORtC5vvX_z-6qw_s6ap9rnAotQOO_1elj7cW1LiIajRqNAMyl8p6PdoIV_uEZFE0GlMVTjNi8fvRsVsFN_IIoUFXQqYdKNIxEbZIh28/s1600/image-1.jpeg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhU6PXolZQeXjY9uFGFbfaQpXjDKbssHr0-83JpORtC5vvX_z-6qw_s6ap9rnAotQOO_1elj7cW1LiIajRqNAMyl8p6PdoIV_uEZFE0GlMVTjNi8fvRsVsFN_IIoUFXQqYdKNIxEbZIh28/s320/image-1.jpeg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">This is us with Norah and her Mommy Liz</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">This is where my food tube leaked everywhere</td></tr>
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Halloween-</div>
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I had a lot of fun getting dressed up for halloween. This year I went dressed up as a garden gnome. For halloween I went and watched daddy play flag football. It was such an awesome night out I was happy to spend it outside. Then later, my cool nurse Joan came to take care of me. At first I thought a giant cat was taking care of me but then I heard her voice and knew who it was.</div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgA-Vqx9gnVUqFTs9zzkXGMkXhwX7qSfoXi0wEm4TR9PQV4xaTckSiVFsR6mjXjy-UmSEawK3Ds1AamSirxIELtHHFM9ehoqrTxWC6q2kNxHhHSwspyOjiGdFwYHdNFltHivvitXbZFLg4/s1600/image-3.jpeg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgA-Vqx9gnVUqFTs9zzkXGMkXhwX7qSfoXi0wEm4TR9PQV4xaTckSiVFsR6mjXjy-UmSEawK3Ds1AamSirxIELtHHFM9ehoqrTxWC6q2kNxHhHSwspyOjiGdFwYHdNFltHivvitXbZFLg4/s320/image-3.jpeg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Joan "kitty" the nurse</td></tr>
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<a href="http://1.bp.blogspot.com/-LWvhI-l9_us/UoBNm4Cm2EI/AAAAAAAAAZ0/fkKk4_otg2U/s1600/halloween.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://1.bp.blogspot.com/-LWvhI-l9_us/UoBNm4Cm2EI/AAAAAAAAAZ0/fkKk4_otg2U/s320/halloween.jpg" width="280" /></a></div>
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<tr><td class="tr-caption" style="text-align: center;">I visited dad at school for the annual halloween parade. He didn't even recognize me with my beard and eyelashes!</td></tr>
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-Places I traveled</div>
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As always I get to travel the world with all of my great friends. I'm slowly making progress around the world. I think I've currently see over 15% of the entire world. Thanks to everyone for showing me all the amazing places around the world. Here is where I've been recently!</div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkyauD59CZNXIvMazfAB26XGeF50CRD4y17OuAG-GQiELila4p30EdTLEEiXR2qvPfww861jlCJJfOiOCUHgeSe9zHc_nkZQv69bLklLoh3-W6BdARqIa3ya6FGHs2DD1pZAaKmZfAwW8/s1600/julieson.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkyauD59CZNXIvMazfAB26XGeF50CRD4y17OuAG-GQiELila4p30EdTLEEiXR2qvPfww861jlCJJfOiOCUHgeSe9zHc_nkZQv69bLklLoh3-W6BdARqIa3ya6FGHs2DD1pZAaKmZfAwW8/s320/julieson.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I got to play baseball with one of daddies friends from school</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqC6ZnRkePZjs-2621kCF7lGFVD03yJFdnohCMvmht_81ICQ1ZR_r98mkCgerQM97VciRtZ4ykvMvcAje7JqCrKI7VU74hKAELLPlguR0QRuWCywM2lRTXciv5B7NoPmgw-SrGopOL5DQ/s1600/IMG_1294.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqC6ZnRkePZjs-2621kCF7lGFVD03yJFdnohCMvmht_81ICQ1ZR_r98mkCgerQM97VciRtZ4ykvMvcAje7JqCrKI7VU74hKAELLPlguR0QRuWCywM2lRTXciv5B7NoPmgw-SrGopOL5DQ/s320/IMG_1294.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I ran the iditarod with April Gordon in Alaska</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8SbMQ2-iXr4YRGsDMUZ0adYU5kkuix5RJKuGCMAyhTKDSsgSIv99iqvQFapsvP93j8J8w3RyX-k9VUWriPNUIkZoIxOzo7BfRD7H9Kkdk61kyMpi9wxiHLnB-5iOEfI74iMMtGvhqN8s/s1600/travel1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8SbMQ2-iXr4YRGsDMUZ0adYU5kkuix5RJKuGCMAyhTKDSsgSIv99iqvQFapsvP93j8J8w3RyX-k9VUWriPNUIkZoIxOzo7BfRD7H9Kkdk61kyMpi9wxiHLnB-5iOEfI74iMMtGvhqN8s/s320/travel1.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Tony Cat took me to Munich Germany. I thought castles like that only existed<br />
in Disney movies </td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-5wrIbpSroE0/UoBRDRYWNXI/AAAAAAAAAaA/b9uly0xf9_0/s1600/2013102995155223.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://3.bp.blogspot.com/-5wrIbpSroE0/UoBRDRYWNXI/AAAAAAAAAaA/b9uly0xf9_0/s320/2013102995155223.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I got to go all over the South with my Grandma & Grandpa Boseman.<br />
Here we are in Warner Robbins GA picking Cotton<br />
We also went to South Carolina, and New Orleans</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnuAsMww7w4Dd_8jbHAQRwMsBuzcs3cacGBOfziPHF1tOMICsIyRuLyrMDGGE0j7Ree9Wjuch4dlg3oqAosD3eZdR0oEAWtWuw52GTA4FnUygmKkjdE1cHLZe2few4XTK0vfYWMu7Y3Hg/s1600/Russia1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnuAsMww7w4Dd_8jbHAQRwMsBuzcs3cacGBOfziPHF1tOMICsIyRuLyrMDGGE0j7Ree9Wjuch4dlg3oqAosD3eZdR0oEAWtWuw52GTA4FnUygmKkjdE1cHLZe2few4XTK0vfYWMu7Y3Hg/s320/Russia1.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Bill took me on Vacation to moscow Russia. Here I am at Bolshoi Theatre<br />
which is across the street from Red Square</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQvm2hZCP4ksw6wY_OlAjiWKyMuTpJIhHjdFEs28aAC90rm4cu-Fbn1LjNAI9aglu3Z1fluOd9oqjo90njWJCOcSGUWAs4Vtn6i5x5nmrNwDGtzli0nchQtB-pv8iJDFn2cQtRIwHL8Pc/s1600/Russia2.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQvm2hZCP4ksw6wY_OlAjiWKyMuTpJIhHjdFEs28aAC90rm4cu-Fbn1LjNAI9aglu3Z1fluOd9oqjo90njWJCOcSGUWAs4Vtn6i5x5nmrNwDGtzli0nchQtB-pv8iJDFn2cQtRIwHL8Pc/s320/Russia2.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Here are Bill and I at the Cathedral of Christ the Savior in Moscow Russia </td></tr>
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<br />I'm only 9 states short of traveling to every state in the US. So if your going to any of the following states I'd love to go with you (I'd love to go anywhere, but would love to check these off my list)</div>
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-Delaware</div>
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-Oklahoma</div>
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-Kentucky</div>
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-New Hampshire</div>
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-Virgina</div>
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-West Virgina</div>
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-Massachusetts</div>
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-Mississippi</div>
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-Rhode Island</div>
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<br /></div>
<div style="position: relative; width: 550px;">
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<a href="http://www.travbuddy.com/travel-widgets" style="color: #ffbf42; font-size: 14px;"><strong>Create your own travel map</strong></a> - <a href="http://www.travbuddy.com/" style="color: #ffbf42; font-size: 14px;"><strong>TravBuddy</strong></a></div>
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Anonymousnoreply@blogger.com24tag:blogger.com,1999:blog-6932186888465809900.post-2398793745405221582013-07-16T07:15:00.000-07:002013-07-16T07:43:40.598-07:00Big News!!!Hey Guys, remember a couple of months ago when I told you that I had some really exciting news... but couldn't tell you about it yet? Well guess what, I can tell you now!<br />
<br />
<h3>
Go to <a href="http://www.jettpowered.com/">www.jettpowered.com</a></h3>
<h3>
</h3>
Everyone that I know has been sooooo AMAZING to me. You all have offered time, help, money, or just the thought of taking me with you on vacation. Not all my PCH friends have such a great support system and I want to make sure they have all the best opportunities to grow and learn. All the proceeds from this foundation are going to help support my friends and fellow angel babies that need a little help.<br />
<br />
People all tell me I'm pretty strong. They tell me that I've fought every day of my life. They tell me that when they are doing hard things, they think of what I have fought through and it helps them to accomplish the task at hand. You guys are nice to say these kinds of things. I still think I'm just a regular boy. M & D thought it would be appropriate to have this foundation raise money through sporting events, so when the going gets tough you can be "Jett Powered" (I really like the sound of that) and make it to the end. <br />
<br />
We are lucky enough to even have our first event planned. The awesome people over at FitFarm (the gym M & D go to) have organized a competition in our name. It is scheduled for Saturday July 20th.<br />
Along with everything else, we have a new logo and some new shirts. You can check all that out over at www.jettpowered.com. As you can tell we are all pretty excited about this. So if you're bored this saturday I'd love to see you at FitFarm<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-edk5PsaVM_o/UeVTvPkgf-I/AAAAAAAAAVc/43S59-OwoLM/s1600/rower.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://4.bp.blogspot.com/-edk5PsaVM_o/UeVTvPkgf-I/AAAAAAAAAVc/43S59-OwoLM/s320/rower.jpg" width="320" /> </a></td><td style="text-align: center;"></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Daddy has been helping me train for the competition the last couple weeks!</td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td></tr>
</tbody></table>
<br />
On another note: Daddy finally took his dental boards and he has a couple weeks off... I love having him all to myself again<br />
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<tr><td class="tr-caption" style="text-align: center;">Oh, did I mention that I love summertime too!</td></tr>
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<br />Anonymousnoreply@blogger.com1tag:blogger.com,1999:blog-6932186888465809900.post-59446095102972002312013-06-23T18:00:00.004-07:002013-06-23T19:09:39.656-07:00Just so you know...I'm a BIG BOY now.<span style="font-family: Georgia, Times New Roman, serif;">Okay, so maybe I'm not a big boy when it comes to size (I'm still working on it), but I have turned into such a BIG BOY recently in other ways and you will see why.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">For starters, I eat REAL food through my tummy button (G-Tube) now! My mommy and daddy felt like the formula that I was on wasn't cooperating with my tummy...and I agree. It made me feel yucky ALL the time. In fact, the yucky stuff couldn't even stay in my belly. I was throwing up a lot. Mommy and Daddy were worried about me. One day, mommy started researching what would help me feel better. She discovered that a blended diet was the way to go for me. The formula that I was on was full of sugar...take a look for yourself. The second and third ingredients are SUGAR! </span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMsnUNIoqPj4enBwMN7VdrEA4IoOW04sTBbQBBp-1JzW1BJh-pfe9DRYVrWXXw-Mf3Cvz_ZP7Ra_aQmjhyLE-MllK5vDPfmqGPQWoiLkjNsr2OzojZaKX7iqwv1i-o_YmzmncyXPQs7xw/s1600/photo.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMsnUNIoqPj4enBwMN7VdrEA4IoOW04sTBbQBBp-1JzW1BJh-pfe9DRYVrWXXw-Mf3Cvz_ZP7Ra_aQmjhyLE-MllK5vDPfmqGPQWoiLkjNsr2OzojZaKX7iqwv1i-o_YmzmncyXPQs7xw/s320/photo.jpg" width="278" /></span></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0H65gzh23qihOtPkhraZpUKepQvCPom3lOXDb3e_OzjIxZ1CFp7G23ndbQFCg5F9rXU40C2SIiLBAxBtXRR-YDXeuc1CdzBCPtA0X3YT1S002uKRppNvIuDBrltEuI39HOkoJH3EeG9I/s1600/IMG_2039.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0H65gzh23qihOtPkhraZpUKepQvCPom3lOXDb3e_OzjIxZ1CFp7G23ndbQFCg5F9rXU40C2SIiLBAxBtXRR-YDXeuc1CdzBCPtA0X3YT1S002uKRppNvIuDBrltEuI39HOkoJH3EeG9I/s320/IMG_2039.jpg" width="320" /></span></a><span style="font-family: Georgia, Times New Roman, serif;">Now, my mommy blends up real food in our Vitamix. She puts in nutritious and filling ingredients like: coconut milk, ground flaxseed, banana, sweet potato, green beans, eggs (cooked), rice cereal, and avocado oil. She blends it up real fast so that everything mixes together smoothly. After that, it goes straight into my belly through my feeding tube! How cool is that?</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">What's even better is that I am feeling A LOT better. I don't vomit as much, I can go potty a lot easier, and I am a happier boy. The doctors are still a little skeptical that mommy and daddy changed my diet so drastically and so they have a nurse come to my house every week to check my electrolyte levels. When she comes, she pokes me in the finger with a sharp needle (ouch!) and then checks my blood to make sure that I am still a healthy, growing boy. So far, all of my needle pokes have come out great. Yay for mommy and daddy! They know what's up.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">As for the next BIG change in my life...I have a new set of wheels! Now I can go real fast. This is my first wheelchair and it will last me a long time (up until I am 54" long!). Doesn't it look all shiny and new? I didn't really like it at first because I would rather have mommy or daddy hold me, but I got the hang of it, especially when we get to go outside for walks. That is the most fun part! Daddy said he is going to install some tower speakers and some afterburners. I will definitely be the coolest kid on the block.</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjA0K8A5fJGGvCubyLoL18PBLmPzYj4wAPPAfscy0eWiRYtp0n8LJaYU4zqMSCENTNaNopRsVYCHenHUn0mOZjE-c9fiYZDpqFkJKNggy-jkdYOLiG3fbPPv6nhZpje1B6ph0Kskp5dT7E/s1600/photo+4.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjA0K8A5fJGGvCubyLoL18PBLmPzYj4wAPPAfscy0eWiRYtp0n8LJaYU4zqMSCENTNaNopRsVYCHenHUn0mOZjE-c9fiYZDpqFkJKNggy-jkdYOLiG3fbPPv6nhZpje1B6ph0Kskp5dT7E/s320/photo+4.jpg" width="320" /></span></a></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Speaking of coolest kid on the block, I have some really great friends. They are always so nice to include me and shower me with stuffed animals. Below is my mommy's piano student, Crew. He and his brothers are so fun to be around.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">I also like to ride my neighborhood with these fun kids. Maylee, my next door neighbor, held me tight so that I was safe. I guess no one else got the memo that they weren't supposed to wear pants…just me!</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaNeeZ-VYvpjAlo_U9pewESNfMC_7EE1WyZoMTwBeWktxUXLJlOopB0hVff0SiEpLrdRdXeyWepeD9TErvYyJN4jNgr1-tRL206Uk_9JJl81KZYoPaptODeQO9wdwmEC8mT8PjQQj8y7E/s1600/IMG_9375.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaNeeZ-VYvpjAlo_U9pewESNfMC_7EE1WyZoMTwBeWktxUXLJlOopB0hVff0SiEpLrdRdXeyWepeD9TErvYyJN4jNgr1-tRL206Uk_9JJl81KZYoPaptODeQO9wdwmEC8mT8PjQQj8y7E/s320/IMG_9375.jpg" width="240" /></span></a></div>
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<span style="font-family: Georgia, Times New Roman, serif;">And guess what, you guys? I have also fit in some time to travel with some of mommy and daddy's favorite people! Here is where I've been the last couple of months.</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEin0DAsDnNAT0yZ0Os9O2q6aNOZMgb9T2TonMatoj3cCxG0f96sZyY5pxXRzYTQX6LCLihcnbqHuBL4CgIEo3pwxYzgyJx9TKDnCijsmdsDQA-tp4FUd8DCFrE_vbKd8Ux-BmrAEavi9jU/s1600/IMG_1573.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEin0DAsDnNAT0yZ0Os9O2q6aNOZMgb9T2TonMatoj3cCxG0f96sZyY5pxXRzYTQX6LCLihcnbqHuBL4CgIEo3pwxYzgyJx9TKDnCijsmdsDQA-tp4FUd8DCFrE_vbKd8Ux-BmrAEavi9jU/s320/IMG_1573.jpg" width="213" /></span></a></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Cancun, Mexico with Cody and Chelsea Winterholler. </span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhs5dvWIpdlEtLinDz2KUhLi6eu0idwAQA8Ujz53pTm2q5uMz_whzGxErm4SWjCNMLuwe-FXpxudrhd5TkFG5aq5MRHx_ubXv-0BUtah6nKaQXtRnFO2KFchi33GiHfqgt8H8z0h5iF1ow/s1600/IMG_4027.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhs5dvWIpdlEtLinDz2KUhLi6eu0idwAQA8Ujz53pTm2q5uMz_whzGxErm4SWjCNMLuwe-FXpxudrhd5TkFG5aq5MRHx_ubXv-0BUtah6nKaQXtRnFO2KFchi33GiHfqgt8H8z0h5iF1ow/s320/IMG_4027.jpg" width="320" /></span></a><span style="font-family: Georgia, Times New Roman, serif;">Puerto Rico with the Winterhollers. They were traveling fools this month! We had so much fun soaking in the beautiful scenery and shopping in the city.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">April Gordon, mommy and daddy's friend from Utah, took me to Europe, to a few places that I had never been! We visited the sites of where "The Sound of Music" was filmed and explored the beautiful architecture in Prague. She is such a fun traveling buddy because she loves to laugh and do adventurous things.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Last, but not least, I got to go to Tribalfest in California with one of my bestest nurses ever! Joan (on the far left) is a fabulous belly dancer and looked beautiful in all of her costumes. She even taught me how to shake my belly!</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">As you can see, I am one BIG and one HAPPY boy lately!</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Have a good week everyone. I love you all and thank you for always thinking of me when you go on your adventures!</span></div>
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Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com2tag:blogger.com,1999:blog-6932186888465809900.post-61523648805487550352013-05-01T15:56:00.002-07:002013-05-01T16:14:06.083-07:00Look at me!!!!!I have had the best month ever!!! Lots of people use that phrase, but I'm serious, this was the best month of my entire life!! Let me tell you why.<br />
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I bet most of you have never seen me laugh or smile, well, here's proof that I do sometimes</div>
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About 8 weeks ago my brain doctor wanted to try me on some new medication. I wasn't responding very well to my current stuff, I still had really bad chorea, (seizure like movements), and bad tummy pain (I had to fart but couldn't... it sucked!) Everyone decided to try me on this medicine that hasn't been used very much in people my age. it has been really successful with people that are older and have something called hunting funs disease (huntingtons). Well after about 6 weeks my body really started to get used to the new med... and I LOVE it. I no longer feel like I'm having seizures all the time, and I can mostly fart at will (just like daddy). Now that I'm not dealing with those problems as much, I have started to discover the world around me. Here is what mommy and daddy say they have learned recently.<br />
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I love to be tickled:<br />
Did you guys know that my neck is SUPER ticklish? And if you tickle it I will laugh, smile, then try to push you away! I didn't know that either. <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbXEzNa-cyIPhUcyyTaS5NAWYNmdu4xDaqLcNgGWqVZwkE8RKvLYqUBFL3BoSmsdfSeGIfXpNE0U3n_z9peFYOJ8ZKiarYX9oK1sUcjlC5zeWpzvIaSIQem3W2cbGfKcFMeSyVTeUFYVs/s1600/IMG_0844.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbXEzNa-cyIPhUcyyTaS5NAWYNmdu4xDaqLcNgGWqVZwkE8RKvLYqUBFL3BoSmsdfSeGIfXpNE0U3n_z9peFYOJ8ZKiarYX9oK1sUcjlC5zeWpzvIaSIQem3W2cbGfKcFMeSyVTeUFYVs/s320/IMG_0844.jpg" width="240" /></a><br />
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<tr><td class="tr-caption" style="text-align: center;">I'm not scared to punch someone if they tickle me<br />Too much</td></tr>
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I love to be around other people, especially other kids:<br />
Sometimes mommy will let me go play with the neighborhood kids around me. I wish I could run around like them, but at least I get to watch them play, and thats really fun.<br />
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I love the outdoors:<br />
Not only has my body felt a little better lately, but there have been a few days (only a few) of nice weather. I decided that I really like the spring time. I can't stand being locked in the house all day every day. Mommy takes me outside and lets me catch some rays whenever the weather is good, and dad usually takes me on nightly walks. Also, Daddy take me over to the swingset and lets me swing. I didn't like it at first but I'm starting to really like the back and forth motion. I was even going higher than some of the other kids at the playground the other day!!!<br />
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My friend Maylee is laughing for me in the background!</div>
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I love toys that blink and make noise:<br />
Obviously I can't be playing with RC airplanes, and tool kits like my dad tries to make me do; but I really like flashy toys that play songs. Daddy adapted my favorite lantern toy to work with a special switch that I can push. Its my favorite thing to play with now, because I can control it. Thanks so much to my angel buddy Ethan for the switch. He is back in heaven now and his mommy is letting me use some of his old toys. <br />
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I'm a lot smarter than anyone gives me credit for:<br />
I am missing a couple parts of my brain. I'm not supposed to have any fine motor ability, be able to hold my head up, sit up, talk, or eat through my mouth. A couple of my PCH friends have learned to do a lot more than anybody expected of them, so dang it, I'm going to do the same. I can already push buttons, punch my M&D when they tickle me too much, pull my feeding tube out when my tummy hurts, and mommy and I have our own language... she always knows what I am saying! Plus, M & D think its an accident, but I can say mom (mum actually), soon enough I'll have dad down too. I'm going to keep working and eventually be able to do the rest of the stuff I mentioned that I'm not supposed to do. <br />
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Sorry for the low quality videos, my daddy only has a phone video camera<br />
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On top of all these things that I learned, as always, I got to travel this month.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjswEOhcUWnA0b305jpfhO19JDzZVsj7dc_O9l1Zm4CZ2e7gbnG2IhRfk85to6qtlKA6VCdatcGbJGNuj-Y10pCC84o7c8HjC26v8I9zzbxpkzAmrzmF51HnK1ByWl9PyRNair1m0Yg2MA/s1600/1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjswEOhcUWnA0b305jpfhO19JDzZVsj7dc_O9l1Zm4CZ2e7gbnG2IhRfk85to6qtlKA6VCdatcGbJGNuj-Y10pCC84o7c8HjC26v8I9zzbxpkzAmrzmF51HnK1ByWl9PyRNair1m0Yg2MA/s400/1.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The Wince family took me all over the world with them. Here I am in Niagra Falls Canada with Gavin. Thanks Gavin!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCgFQz_XJEAohh6imquKn1Ya_uhCUxYkYPdaQlTknCvAR89AKX7ZLzYUc9z0i8O_iXdPun-tuA5WUqecsREzzUBe8sZWyOCX4ZoUuunH3-HGQT2pKNw_Jw2-3glyETE9FW6c2Y3Klg200/s1600/2.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCgFQz_XJEAohh6imquKn1Ya_uhCUxYkYPdaQlTknCvAR89AKX7ZLzYUc9z0i8O_iXdPun-tuA5WUqecsREzzUBe8sZWyOCX4ZoUuunH3-HGQT2pKNw_Jw2-3glyETE9FW6c2Y3Klg200/s400/2.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I love the beach! Here I am at Copacabana beach in Rio De Janeiro, Brazil with Gavin and Pam Wince</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSJF-jJuA7DkX0T8Y4c3O7J_rOeS6NUAIAuBLrIFNbWfyav2h4IZQ46luuHiAC5fhLG9v4h-xm7B5mgeF_N-T1Y9eZbGyQQllfsvPBjwbNuFrOKyTjsNGn-m76LlE_4jelMVAAdT91jPc/s1600/3.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSJF-jJuA7DkX0T8Y4c3O7J_rOeS6NUAIAuBLrIFNbWfyav2h4IZQ46luuHiAC5fhLG9v4h-xm7B5mgeF_N-T1Y9eZbGyQQllfsvPBjwbNuFrOKyTjsNGn-m76LlE_4jelMVAAdT91jPc/s400/3.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">While in Rio, Gavin showed me the famous "Christ the redeemer" statue on Mt. Corcadova</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-1bSJCPeF1y4q5XldgTVnFoLDna3utysp27abKjDC_Rx_N0TKUJ6AyxCLoLHAHxCHOS4T25DkHSR_4kHn3NJZCwQYsJQql_bZFaAEqAR7xzAyXjaOoO_-NVyhMj5nFOkf2efwFLBJ-to/s1600/4.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-1bSJCPeF1y4q5XldgTVnFoLDna3utysp27abKjDC_Rx_N0TKUJ6AyxCLoLHAHxCHOS4T25DkHSR_4kHn3NJZCwQYsJQql_bZFaAEqAR7xzAyXjaOoO_-NVyhMj5nFOkf2efwFLBJ-to/s400/4.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I got to go up to the observation deck of the empire state building with James Schlemmel. All the people down there look like ants!!!</td></tr>
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<br />Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com2tag:blogger.com,1999:blog-6932186888465809900.post-49671234708840826922013-03-30T14:46:00.002-07:002013-03-31T13:23:02.718-07:00March Travels<span style="font-family: Georgia, Times New Roman, serif;">Hey Everyone,</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">The past couple weeks I have been feeling amazing!!! M&D put me on a new drug and it has changed how I feel everyday. Life is actually kind of fun when I'm not always in pain. Mommy plays with me all day, gives me kisses and tickles, makes me laugh, then daddy gets home and throws me in the air… Its soooo much fun. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">I've been so happy lately, mommy even let me play with a friend. My friend Dillon came over. He's much younger, but he tried to teach me how to hold hands. My crazy movements don't let me hold hands for very long, but I think we got it down by the end.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Too bad I get sick soo easily. I've been in the hospital for the last couple of days because I had a really high fever (105), thats why I finally had time to write in my blog. The good news is that I'm headed home today. For more details from my mommy, click <a href="http://bosecrew.blogspot.com/2013/03/lets-remember-good.html" target="_blank">HERE.</a></span><br />
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<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
<span style="font-family: Georgia, Times New Roman, serif;">On a brighter note, I decided what I want to do for a career. I want to do impersonations. Here are a couple I'm working on. Do you think I have a future in it? Any requests, let me know, I'll work on them!</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikEgFVZzvLeTIve6Qj5uwHW5dXa1vmLAaHFKpjt6sfY2sPh3-Zl0-E5-mJk8GSQyZZ8L9JqYB0DZabaed4RX-1f8jIIfU8tTyLGbX3yAMROMM-W1WLkPcEh2ADh3synYNv7bpiSevw9YE/s1600/IMG_0664.PNG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikEgFVZzvLeTIve6Qj5uwHW5dXa1vmLAaHFKpjt6sfY2sPh3-Zl0-E5-mJk8GSQyZZ8L9JqYB0DZabaed4RX-1f8jIIfU8tTyLGbX3yAMROMM-W1WLkPcEh2ADh3synYNv7bpiSevw9YE/s400/IMG_0664.PNG" width="400" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">Here is my best "Walter" impersonation. If you don't know who Walter is, look up Jeff Dunham.</span></td></tr>
</tbody></table>
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfCmg6jg3WhszOKNiw2jl94GgdSqtJd2M93bwUljnLkLhCbJw2sFMjzK0ka9VFOA1mBnXWP3TYp1rZhNYy_XbN-iYiEis-vRGltAj-hA3W90I_iP0ki6LxUEXDZxLhwAdC3j0MPKr96qU/s1600/IMG_0665.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfCmg6jg3WhszOKNiw2jl94GgdSqtJd2M93bwUljnLkLhCbJw2sFMjzK0ka9VFOA1mBnXWP3TYp1rZhNYy_XbN-iYiEis-vRGltAj-hA3W90I_iP0ki6LxUEXDZxLhwAdC3j0MPKr96qU/s400/IMG_0665.jpg" width="300" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">Here, I am trying to act like a frog. I don't quite have the jumping part yet, but I think I have the crouching part down perfect.</span></td></tr>
</tbody></table>
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
<span style="font-family: Georgia, Times New Roman, serif;">I am so lucky to be able to have so many amazing experiences with all of my friends. I wanted to show you all where I traveled to this month.</span><br />
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
<span style="font-family: Georgia, Times New Roman, serif;">The Rigby family (this is my aunt Amy and uncle Jeremy that came up with the Jett B t-shirt idea)</span><br />
<span style="font-family: Georgia, Times New Roman, serif;">they took me to Newport Beach.</span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">Its a little bit blurry, but I know we all had a blast!!!</span></td></tr>
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<!--StartFragment--><span style="font-family: Georgia, Times New Roman, serif; font-size: small;"><span style="font-family: Cambria; font-size: 12.0pt; mso-ansi-language: EN-US; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: "MS 明朝"; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-fareast; mso-hansi-theme-font: minor-latin;">Sebastian and his wife took me to The National Monument
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<span style="font-family: Georgia, Times New Roman, serif;">Rich and Dot Enslinger took me all over the world. Here are a few of their pictures</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEis3i7uiOowdiwQDy3ysqgWSXC9mpFCGYHh-eZg9rN1Vtnel8ZGRaSEkJCT0ivJKHBDnsvr0_O2ZARCB5_87SoqdkKrhammFj6Y_FLt6T1G2P5fXfbiFWjt3cnZQjsgGVyRkJf1pJmaTeo/s1600/4.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEis3i7uiOowdiwQDy3ysqgWSXC9mpFCGYHh-eZg9rN1Vtnel8ZGRaSEkJCT0ivJKHBDnsvr0_O2ZARCB5_87SoqdkKrhammFj6Y_FLt6T1G2P5fXfbiFWjt3cnZQjsgGVyRkJf1pJmaTeo/s320/4.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">Here I am with Rich in Easter Island. I got to see these famous statues up close and personal</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWQPlWhC1Hlkmfl6HHWr2t8EqTzG0E6-UAvTcp847OgZhYgOm8sblSTcL5V9Ki2qSjMy5QmoqloFOqeh6jC77y1f08cEM_V5yOX61zGT3ncgI0I9OLR0SRh8cbjeENr8sVAYFUJXDxB4E/s1600/5.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWQPlWhC1Hlkmfl6HHWr2t8EqTzG0E6-UAvTcp847OgZhYgOm8sblSTcL5V9Ki2qSjMy5QmoqloFOqeh6jC77y1f08cEM_V5yOX61zGT3ncgI0I9OLR0SRh8cbjeENr8sVAYFUJXDxB4E/s320/5.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">Here we are in Bali Hai (from the movie South Pacific) This place is so remote I had to do a lot of research so I could put it on my "places traveled" map. Definitely the most remote place I have been to yet! (I hope Vanuatu was correct)</span></td></tr>
</tbody></table>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtC5IvmpMF5p4Ih4XiOccK78bMbaRFAMF2MQTmNiqlG1z0D46bU9dO-Bg3p7UvPEPdHAOgpoQ7-q15BUp9iVdWoQE8Y1_AV_nyZq_weELsFxF7ASXAuX087ZrQgUMdodANWlF81tS9Kco/s1600/6.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtC5IvmpMF5p4Ih4XiOccK78bMbaRFAMF2MQTmNiqlG1z0D46bU9dO-Bg3p7UvPEPdHAOgpoQ7-q15BUp9iVdWoQE8Y1_AV_nyZq_weELsFxF7ASXAuX087ZrQgUMdodANWlF81tS9Kco/s320/6.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">Next we went to South Africa. Here we got to do tons of really unique things. First, we played with some really big kitties. I think Rich was a little nervous, but not me, I love big kitties!</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjImHARoRRlc8lBZ9FHRHCe5E6Oc4wpjN5eXAHTXfFxsPtm61gi17uifvqnblAdjWBG6Sh62-ys_qH7AcJP5HrYXmDH-pf9mBOLK5d41xaOtzGZwFshJ-Hnd7FqHuLFzSQIPMIviOMfeXI/s1600/7.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjImHARoRRlc8lBZ9FHRHCe5E6Oc4wpjN5eXAHTXfFxsPtm61gi17uifvqnblAdjWBG6Sh62-ys_qH7AcJP5HrYXmDH-pf9mBOLK5d41xaOtzGZwFshJ-Hnd7FqHuLFzSQIPMIviOMfeXI/s320/7.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">Rich let me feed the Giraffes</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7qnC4mV57rZfCgF1AViy3sJBuYcHuo1gs-XSbuQxIwidxpCOQBvKAe5E2qS897_QXY3jax2YY3aOii8EN1RwDCXQ53jmoGrwgrzj_PZ15BNimq-a5aREkjSj2pkg6rKOQx5hxbywZ4sc/s1600/10.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7qnC4mV57rZfCgF1AViy3sJBuYcHuo1gs-XSbuQxIwidxpCOQBvKAe5E2qS897_QXY3jax2YY3aOii8EN1RwDCXQ53jmoGrwgrzj_PZ15BNimq-a5aREkjSj2pkg6rKOQx5hxbywZ4sc/s320/10.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">Next, Dot and I were introduced to our monkey friend. He couldn't see very well, so he tried to steal Dot's glasses</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghdAYqegZF_liFLJFN61AAAAI77gz0u2U_EM7G1IH5JcP-29Ibjk3-HXk1y0Z8XIN2BqlsZ79-F20FyId37q4ca-dOIsS5U9hPAtIMpYdvgL76m9q8qTCGVVpFXUKEJN7orN_MSQfarKo/s1600/8.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghdAYqegZF_liFLJFN61AAAAI77gz0u2U_EM7G1IH5JcP-29Ibjk3-HXk1y0Z8XIN2BqlsZ79-F20FyId37q4ca-dOIsS5U9hPAtIMpYdvgL76m9q8qTCGVVpFXUKEJN7orN_MSQfarKo/s320/8.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">We had to first make friends with the elephant</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJibRV1jrKiix1Js0cq8WvoSTBHmaIYEb6bND7ycleQ0wBi_mIMtOO9M7_ln2TkaVJeYbZtTtQwaVVE7idqvP6dhN-Qog0sh0SkF-Ut7oAoGCxYOsTDdptWGSUklP636S_CQ479d8BOQw/s1600/9.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-family: Georgia, Times New Roman, serif;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJibRV1jrKiix1Js0cq8WvoSTBHmaIYEb6bND7ycleQ0wBi_mIMtOO9M7_ln2TkaVJeYbZtTtQwaVVE7idqvP6dhN-Qog0sh0SkF-Ut7oAoGCxYOsTDdptWGSUklP636S_CQ479d8BOQw/s320/9.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">Then we got to feed him</span></td></tr>
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<span style="font-family: Georgia, Times New Roman, serif;">Thanks so much for eveyones well wishes, thoughts and prayers. I am so lucky to be surrounded by so many amazing people. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Also, I want to give a HUGE SHOUT OUT to <a href="http://jettmtb.com/" target="_blank">JETT MTB</a>. They made a really cool mountain biking jersey for me. Over 70 people bought jerseys and are now taking me on bike rides too. If you have a mountain bike and need any gear, check out their website <a href="http://jettmtb.com/" target="_blank">(www.jettmtb.com)</a> because they have some cool stuff. (and their name is Jett, so they have to be awesome, right?)</span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia, Times New Roman, serif; font-size: small;">World Champions, Fabian Barrel and Anne-Caroline Chausson, took me with them on the trail. Thanks guys!</span></td></tr>
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<span style="font-family: Georgia, Times New Roman, serif;">On another note, in the coming weeks we will have some really really exciting news to tell you about. I can't tell you quite yet because M & D would be mad at me, but hopefully soon.</span><br />
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
<span style="font-family: Georgia, Times New Roman, serif;">P.S. I don't have any brothers or sisters on the way, so you can rule that option out</span><br />
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<br />Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com1tag:blogger.com,1999:blog-6932186888465809900.post-68061984937030347012013-03-09T22:13:00.000-08:002013-03-09T22:13:51.199-08:00My first mini vacationLast week I turned 15 months old. Mommy and Daddy thought that I was ready to take on the world myself. They planned a quick trip to Kansas City Missouri (about 2.5 hours away) with our friends the Bowen's. They were pretty nervous because I've been pretty grumpy lately. They don't know this, but I've been secretly waiting for a trip like this for months, so once I heard that they were going to take me I decided that I'd be on my best behavior. We had sooooo much fun on this trip I can't wait until we get to do something like it again.<div>
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Kansas City is famous for their BBQ. They have more BBQ restaurants per capita (whatever that means) than any other city is the nation. So we had to stop and try the most popular BBQ joint in town called Oklahoma Joe's. It was in a gas station and the line wrapped into the parking lot... apparently that is a sign of deliciousness. M & D tried to feed me some brisket, but they were just joking. When I opened my mouth to try a bite they pulled the brisket out... how rude are they.</div>
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Next, we went to a mall to play on the toys. They had a lot of really fun toys to play on so dad took me on all of them.</div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOM3E0LVpWPxhmvqPehBGAkXoAlMcKGHiJ5W4He3Rf9MP_HzntiIxJ5ABYBXt35nDHA78gf70KxeJkLSGlIOr92-DZXQUGcFBv_Z8Vx4o2NMBjUZtHQCvB3CW2iqid61ELaLGHPhJf5Is/s1600/IMG_0587.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOM3E0LVpWPxhmvqPehBGAkXoAlMcKGHiJ5W4He3Rf9MP_HzntiIxJ5ABYBXt35nDHA78gf70KxeJkLSGlIOr92-DZXQUGcFBv_Z8Vx4o2NMBjUZtHQCvB3CW2iqid61ELaLGHPhJf5Is/s400/IMG_0587.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">If you know me you know that I love airplanes</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJolzRxyVWya1b7qz67KmOCu_hunuAKYe0TnlVb6laJXJLj8qKokN0umhkzN84S6bOsxQqGEdujXnGLAttErEe9hvs9hMlcLlti2K0H0k7yRp7tcg1yaTFKXC-lMkrRduyjip1GNYkTNY/s1600/IMG_0593.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJolzRxyVWya1b7qz67KmOCu_hunuAKYe0TnlVb6laJXJLj8qKokN0umhkzN84S6bOsxQqGEdujXnGLAttErEe9hvs9hMlcLlti2K0H0k7yRp7tcg1yaTFKXC-lMkrRduyjip1GNYkTNY/s400/IMG_0593.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I don't know why dad insisted that I go on the bus, but I didn't like it very much.</td></tr>
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<br />Next was my very favorite. We went to a really cool place with loud music, lots of kids, and water everywhere. It was so wild and crazy I didn't know what to do with myself. <div>
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<tr><td class="tr-caption" style="text-align: center;">We started off in a pool that was pretty cold. I didn't like it at first buy I warmed up to it eventually</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtC-A0aLeVgc5BRjIcNlWWrSH6FY8obwcAuKBqKFkqPbrUHr1W9ZXzyGOOTntITaj953A-NA0eyut5_HK1csQIX8Hj_yQ_4WHVzZLxZZ5tu3kLxrcaA59KD7o0XsRximfTUMQlIFN6pVw/s1600/IMG_0630.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtC-A0aLeVgc5BRjIcNlWWrSH6FY8obwcAuKBqKFkqPbrUHr1W9ZXzyGOOTntITaj953A-NA0eyut5_HK1csQIX8Hj_yQ_4WHVzZLxZZ5tu3kLxrcaA59KD7o0XsRximfTUMQlIFN6pVw/s400/IMG_0630.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Next we went to an area with really hot water called a hot tub. I LOVED this, I could hang out in there all day</td></tr>
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<br />After a long day at the water park we headed to dinner. Daddy got a suggestion and we tried a Kansas City Local restaurant called Corner Cafe. Everybody loved the food there, even me. They brought us out a huge round roll that was covered in frosting, I think it was called a cinnamon roll. Mommy gave me some frosting to try. It was soooo good I'm still licking my lips. M & D said it was the best "home cooking" they had ever had, so it must have been pretty good. My only complaint is that they didn't have anything on their kids menu that was "feeding tube friendly", so I didn't get to try anything except the sweet roll</div>
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<tr><td class="tr-caption" style="text-align: center;">I think this thing was bigger than my head!!!</td></tr>
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After a long, fun, tiring day we headed back to my first hotel room ever. I was pretty tired and kind of just zonked out for a little bit. </div>
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<tr><td class="tr-caption" style="text-align: center;">I even got to sleep in a hotel. It was awesome, I got my very own big boy bed and everything</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjL8S7Y5NYD7ve-ehjQGm5RhizoXEhzEsZPNY9E82orPUr_o3anZT-eEV6NoswAX21yjeGZ97B6QHU7gTw-w8S_GmMnLlSpVBRmMurWi5ijtbYG_vE8mR3dwb1lEAAsqIsPEwMqF-LkOoE/s1600/IMG_0649.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjL8S7Y5NYD7ve-ehjQGm5RhizoXEhzEsZPNY9E82orPUr_o3anZT-eEV6NoswAX21yjeGZ97B6QHU7gTw-w8S_GmMnLlSpVBRmMurWi5ijtbYG_vE8mR3dwb1lEAAsqIsPEwMqF-LkOoE/s400/IMG_0649.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">When I woke up at night I got to cuddle with Mommy and Daddy, I was in heaven!!!<br /><br /></td></tr>
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The next morning we wanted to go visit some Mormon church history sites that are in Independence Missouri. We saw the LDS visitors center, the community of christ temple and auditorium, and the "temple lot". The whole place was kind of bizare, but M&D wanted to see it so I came along for the ride. I did get to see my good buddy Jesus though, so that made it worth it.<br /><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIU-3dEpV4d9PLvbRL29FL_2sP1Sda45nthewBzNcuxiq0g-kNLWCEgh_1fjI54sSv69__W1AjYKCzi6f_YIiJJLHtq954bWxXQmNVuwGsbT0aOmF0-jwAz-bW1Ewq70M0uD3I1Y5dZ9w/s1600/Christus.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIU-3dEpV4d9PLvbRL29FL_2sP1Sda45nthewBzNcuxiq0g-kNLWCEgh_1fjI54sSv69__W1AjYKCzi6f_YIiJJLHtq954bWxXQmNVuwGsbT0aOmF0-jwAz-bW1Ewq70M0uD3I1Y5dZ9w/s400/Christus.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I got to hang out with my good buddy Jesus when we were visiting some Mormon church history sites</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">This was a cool looking spiral building that is near the church history sites</td></tr>
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After these places we had to drive to one more place before we could go home. We went to see Liberty jail. Its apparently a kind of important place for our church history. I was pretty tired at this point, so I just kind of wanted to get out of there... although it was still pretty cool.</div>
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<tr><td class="tr-caption" style="text-align: center;">Here we are in front of a replica of the jail. </td></tr>
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<br />It was soooo much fun to finally get out and travel. I'm so glad that my body let me venture out and have fun doing this. I kind of understand what all of you guys have been doing when your wearing me on your hearts. Thanks so much for taking me around the world. I know I'll never make it very far in person, but thanks to everyone that has supported me, I'm able to experience these amazing places through you. <br /><div>
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Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com2tag:blogger.com,1999:blog-6932186888465809900.post-56025922768374989802013-03-03T18:46:00.002-08:002013-03-03T18:46:08.429-08:00Anxiously Awaiting Summer<div style="text-align: center;">
<span style="font-size: large;">Wakeboarding season is right around the corner, so you know what that means...I need to get prepared by swimming in the bathtub! Temperatures around these parts haven't been very favorable lately. In fact, it is so cold that mommy and daddy haven't taken me out very much. They say that there are too many germs out there still, so instead, they created some fun for me inside my house! </span></div>
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<span style="font-size: large;">Tonight, I was a big boy, and went swimming all by myself. I loved swooshing my arms and legs around in the water. I was one happy boy!</span></div>
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Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com1tag:blogger.com,1999:blog-6932186888465809900.post-598862764430632342013-02-23T20:58:00.000-08:002013-02-23T21:00:03.360-08:00Today was "SNOW" much FUNAlright everyone, can you keep a secret? Don't tell my grandmas, okay? They would get pretty mad at mommy and daddy if they knew that I went SLEDDING today!! It was my first time ever and I think I loved it so much that we better go tomorrow.<br />
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Lately, my brain has been telling my body to move and wiggle A LOT. This is called <a href="http://en.wikipedia.org/wiki/Chorea" target="_blank">CHOREA</a> and I don't like it at all. In fact, when my body starts wiggling so much, I cannot focus very well and get really stressed. Well, guess what the cure is? SLEDDING. Yup, you guessed it folks. Mommy and Daddy have been really good at distracting me lately from all of my wiggles. They toss me up in the air, swing me to and fro, and bounce me up and down on a big exercise ball.<br />
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Since Omaha has received so much snow, M & D just knew that I would be up for some more adventure today. So when my wiggles started, Daddy bundled me up in my snowsuit and away we went! We climbed the largest mountain I have ever seen. Once we got to the top, you could see for miles! Daddy cuddled me into his chest as we got prepared to go down the hill on our sled. He was laughing and it made me so happy. Before you know it, we were flying so fast down the hill that not even Kusaba (my doggie) could catch up with us. Snow was spraying up into the air and the breeze was so cold, but it felt so good. Daddy could tell that I wanted to go again so away we went! This time, Mommy came on our sled. She was a nervous wreck, but I told her to not be such a sissy pants. We had such a fun time zooming down that hill. I think my ear's are still ringing from Mommy screaming so much. <br />
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<br />Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com1tag:blogger.com,1999:blog-6932186888465809900.post-43967558111842554272013-02-12T18:44:00.002-08:002013-02-12T18:57:23.132-08:00On the mend... Kind ofHey guys, after 2 months of being sick I am finally starting to feel a little bit better. I have some other issues going on right now, but at least I'm over the RSV, Flu, Bronchiolitis, ear infection, hand/foot/mouth, breakthrough chicken pox, and C-diff! (Wow... that was alot to type for a little guy). I have been off of oxygen for a few weeks now and made improvements as far as respiratory issues go, but I've been fighting a little disease called <a href="http://www.nature.com/bdj/journal/v204/n4/full/bdj.2008.113.html" target="_blank">Riga-Fede</a> lately. One of the things that I have always done (because of my brain problems) is stick out my tongue. I can't help it, it has a mind of its own!!! This was never a problem until I started to get my teeth in. Since I never eat with my mouth my teeth are just as sharp as the day they came in. You can probably see where I'm going with this... The Dentist told us that with a case as bad and unique as mine, the only option is to remove my 4 lower teeth. Daddy and mommy talked with the Dr. for a long time to try and come up with a different idea, but the Doc didn't like any of their ideas. So unless something changes, I have to get my teeth pulled out on Feb. 26th. I have to go under sleepy medicine again to have it done. I don't think its going to be a big deal, but mommy and daddy are pretty worried about it.<br />
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Anyway, on a much more exciting note I have some pictures of my travels. Luckily I've been getting around even when I have been sick.<br />
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Phaedra Musselman took me on some really really special adventures. Here are her words about our travels. "<span style="background-color: white; color: #222222; font-family: 'times new roman', 'new york', times, serif; font-size: 15.833333015441895px;">I can't really tell where I went, but let's just say that I went to an area with a ton of sand/dust, filled with landmines, flying this lovely helicopter shown behind me picking up people and soldiers who needed help." Thanks soooo much Phaedra, I'm am honored that I could accompany you in such an incredible cause. </span><br />
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<span style="background-color: white; color: #222222; font-family: 'times new roman', 'new york', times, serif; font-size: 15.833333015441895px;">I found some pictures on Facebook that I didn't realize were there. Sorry to my friends that took me with you and I didn't post on the blog. Hopefully I can get all of the pictures up here. </span><br />
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<tr><td class="tr-caption" style="text-align: center;">Some of my mommy and daddies favorites...Sydne & Daryl Jacques at the "Great Pyramid" in Cancun Mexico</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">DJ Card and Hearing For Life (in Logan Utah) entered a softball tournament in Jett Jersey's.<br />
Too bad the tourney got canceled, I was ready for my first "W"!</td></tr>
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The Lloyds's- I can' even tell you how much they have done with me. They have taken me all over the world… literally. Becky (the cute redhead below) often travels for her work. She has many Jett shirts for different occasions. If you browse through my blog you will see how many amazing places I have already been with them. Here are a few that slipped through the cracks.</div>
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<tr><td class="tr-caption" style="text-align: center;">Becky took me to the Redhead days in Breda, Netherlands</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">This was a worldwide event… Holy cow, look how many Red heads are there!!!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Becky took me to Sydney</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">The entire Lloyd family took me with them to Alaska</td></tr>
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<span style="background-color: white; color: #222222; font-family: 'times new roman', 'new york', times, serif; font-size: 15.833333015441895px;"><span id="goog_865585572"></span><span id="goog_865585573"></span><br /></span>Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com3tag:blogger.com,1999:blog-6932186888465809900.post-49658747478811115752013-01-27T14:50:00.003-08:002013-01-27T14:50:38.645-08:00Long due update, 1 year anniversaryThis is Jetts mom and dad. Jett has been feeling a little under the weather lately and we wanted to update the blog for him since he hasn't felt up to it. <br />
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First off, it was one year ago today that Cody and I found out Jett's diagnosis/prognosis. To say that this year has been a year of tremendous trial and growth would be an understatement. Here is what I have learned...Life is hard. It can be scary and unpredictable. You might feel helpless at times. Yet, life is beautiful. The world is full of amazing, compassionate people. Angels are real. God is real...Trust in Him. Live each day like you mean it. Celebrate the small things. Be kind to those around you...you do not know what they might be struggling with. Have a plan, but be able to roll with the punches. Laughter should happen EVERY SINGLE DAY. Live moment by moment and enjoy the journey, whatever it may bring.</div>
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This past month has been really really rough on everyone. I'll try to sum it up and be as concise as possible. Against our better judgement, we decided to go back to Utah for the Christmas break. I say against our better judgement, because driving 14 hours with Jett is not possible and riding on a commercial airline during the flu season is potentially fatal for Jett. We decided that if we took the proper precautions we would take the risk and fly back to Utah. </div>
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Well it seems that we won't EVER be taking Jett on the airlines again. Jett came down with C-Diff (clostridium Difficile) the day after Christmas. This is a really tenacious intestinal bacteria that causes severe diarrhea, vomiting and overall miserable feeling, and it is very hard to get rid of. Most healthy people that get this bacteria end up losing 5-20% of their body weight over the course of the sickness. Jett only weighed 12.5 pounds and had 0% body fat, so losing weight was not a very good option for him. After a couple trips to the hospital, a couple tests, and some lengthy discussions about treatment options we were sent back home to help him recover. (one of the treatment options is a fecal transplant... yup you read that right. They take fecal matter from a "donor" and inject it through a feeding tube directly into the stomach. For some reason, we had a lot of friends that were really willing to donate for Jett. Haha, I know how to sign up to be an organ donor, but I want to know where I sign up to be a fecal donor) Doctors thought the correct treatment option at this point would be antibiotics, so thats what we tried. Over the course of the next week, Jett lost 2.5 pounds and was back down to 10 pounds. Even though he is fed through a tube and it goes directly to his intestine, he wasn't able to keep anything down. We went to the hospital a couple times for him to get IV fluids so he could stay hydrated, but that did nothing for calories and nourishment. This was a really really scary time for us. If you not taking in any calories your body will start to burn your fat. Once it has used all the fat it will use proteins. If this goes on very long, your body will not have the proteins necessary to function and your organs will start to shut down. Once this happens, it is usually the beginning of the end for kids like Jett. </div>
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Jett was still very sick when we left Salt Lake to come back to Omaha, but we were excited to get back home where we have an amazing pediatrician who knows Jett, our awesome nurses that help us take care of him at night, and friends that support us. When we left, both sets of Jett's grandparents thought they were saying goodbye to him for the last time. It was a very emotional goodbye for everyone. (Neither of us thought this was Jett's time to go, but it was hard to see our parents like that)</div>
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When we got back home and into our (and Jett's) comfort zone he immediately started feeling better and improving. The first night we were home he slept during the night for the first time in 2 weeks. He started tolerating his feeds the next morning, and stopped puking the same day. We thought we were on the mend. </div>
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(Side note: We don't give Jett near enough credit for what he knows and feels. We didn't think he has "comfort zones" or would know the difference between home or grandma's house, but he clearly does. He knows mom and dad. He knows his bed. He knows his nurses. And he has an opinion of where he would like to be)</div>
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Come to find out, we were not on the mend; it was just the beginning. We think he caught another bug on the plane ride home because it showed up 3 days after we got home. </div>
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Just as he was starting to make some improvements on the C-diff, we started noticing that he had a fever. We would give him tylenol and it would come down... at least for the 1st day. Eventually he was maintaining 104 degrees and tylenol wouldn't help at all... so, Back to the hospital. After more blood draws and a couple chest x-rays they determined that Jett had RSV AND the Flu. They let us go home because we have all the necessary equipment there and he would be more comfortable at home. 3 miserable days went by and he kept getting worse. We noticed that his lungs were sounding different when we would listen to them. Since pneumonia is a very deadly sickness for PCH kids, we didn't want to mess around at all. We went back to the hospital for another chest xray. This time they said it had developed into Brochiolitis! Thats better than pneumonia, but still no fun. (For those that are keeping track at this point he currently has the following: C-diff, RSV, Influenza, & bronchiolitis.) They wanted to keep him at the hospital this time. He stayed for 5 days with marginal improvement but at least he wasn't deteriorating either. They eventually sent us home with some oxygen because there was nothing they could do there that we couldn't do at home. But before we went home they figured out that on top of everything else he also had a double ear infection too. (that is 5 things at once!!!!!)</div>
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<tr><td class="tr-caption" style="text-align: center;">Doing his best superman impression</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Hurray!!! I'm home finally</td></tr>
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He has been home now for about 10 days. We were able to bring him off the O2 a couple of days ago and he really like not having that O2 cannule in his nose all the time. He has been feeling good for the last few days and is starting to get back to normal. We still haven't seen many smiles lately, but we sure can't blame him.</div>
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We always knew that Jett was a fighter, but Wow we never knew how much he could fight. It must have taken every ounce of energy in his body to keep from aspirating and developing pneumonia as well as just holding on to his life. I guarantee that it would have been much easier to let go and slip away into the light. We know that heavenly father has a plan for him and its not yet complete, therefore he has to fight as hard as possible until it is complete. Raising a special needs kid is harder than I could have ever imagined but knowing things like that helps me make it through. He inspires me, and as cliche as it sounds, he makes me want to be a better person. </div>
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Sorry for hijacking his blog, I will make sure he gets back to telling you about his travels and other stories as soon as he feels 100% </div>
Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com4tag:blogger.com,1999:blog-6932186888465809900.post-42087624578535313372013-01-11T16:07:00.000-08:002013-01-11T16:07:13.119-08:00Jett B. Biking JerseyI've been pretty sick lately and haven't had a chance to update my blog. I've been in the hospital for the last few days trying to get better. As soon as I feel better I'll tell you all about the last couple of weeks.<div>
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Right now I want to tell you about something else. If you remember back to last September, the awesome Highmark group made some Jett B. biking jerseys and all rode to work in them. (<a href="http://fighterjett.blogspot.com/2012/09/jett-power.html" target="_blank">read about it here)</a> After that, Mommy and Daddy had a lot of people ask them where they could get a Biking Jersey. Since we didn't make them, they weren't really accessible for other people. Thanks to Jett Mountian Bike Gear, there are now <a href="http://jettmtb.com/jerseys/jett-b-fundraiser-jersey.html" target="_blank">Jett B. Biking Jersey's</a> available. (Notice a similarity in the names?) Thanks so much to them for stepping up and helping out.</div>
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The Jersey's are made for mountain biking, but can obviously be used for any type of biking (or other modes of exercise). Thanks to everyone for following my journey.</div>
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If you are interested in one <a href="http://jettmtb.com/jerseys/jett-b-fundraiser-jersey.html" target="_blank">Go Here</a></div>
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Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com3tag:blogger.com,1999:blog-6932186888465809900.post-74824270957698410412012-12-28T16:34:00.000-08:002012-12-28T16:34:23.820-08:00Christmas travels around the worldI've been getting so behind. With all of the fun that has been going on I haven't updated my travels lately. For my latest travels; Mommy and Daddy were brave enough to take me away from home. We are in Utah right now visiting all of my relatives. Its really good to see everyone, but I'm not sure I like being away from home very much. I'm kind of used to my crib, my house, my rules, and having M&D to myself and its kind of weird being away from all of that.<br />
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We have only been here a couple of days, yet I have already had a couple of scares. The scariest was when my feeding tube accidentally got pulled out. My feeding tube goes through a hole in my stomach then all the way to my intestines. It is supposed to be a semi-permanent thing because I have to take sleepy medicine and have surgery to get it replaced. I don't know how it got pulled out because there is a little balloon that is supposed to hold it in my tummy. I guess the balloon must have gotten ripped out of my tummy, because it hurt really really bad... then my tummy started bleeding pretty bad.<br />
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Somehow M&D figured out a way to get my tube back in and I was good to go. Right now, M & D are watching me closely. They are making sure that I don't get sick from my feeds or that blood doesn't come out of my tummy.<br />
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I am so happy that I didn't have to go to the hospital. My M & D might be rookie doctors, but they fixed me! I am back to my normal self and ready for some more travel!!<br />
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First off, did you know that I got to visit Santa in the North Pole?
Well I did...AND I got to help out in the elf workshop. If you don't
believe me, look at the pictures below! A lot of my friends and family
put this Christmas tree together for the Utah Festival of Trees. Isn't
it beautiful!? I am happy to report that this tree sold for a lot of
money. The money will go toward helping other kids like me at Primary
Children's Hospital. <br />
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Thanks for all of the FUN adventures!!</div>
Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com0tag:blogger.com,1999:blog-6932186888465809900.post-7998960573054607562012-12-22T13:30:00.000-08:002012-12-22T13:30:05.586-08:00Heaven is in need of some strong spirits right now!I wish I wasn't posting this right now. I lost my friend Rudy just last week, and this is way to soon to lose another angel baby friend. My friend Isabel retrieved her Angel wings earlier this week. She was only a couple months older than me. She joined the group of angel babies that comes to hang out with me every night. I wonder what is going on up in heaven, that they need so many strong soldiers to return back right now. I know my friends are the best of the best, and whatever they are needed for up in heaven is more important than their mission here. <br />
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Isabel, although I'm excited for your nightly visits, I'm sad that you had to leave your family and other loved ones so early. I know you, Rudy, Maia and all the other PCH superstars are rocking it up in heaven. Save me a pair of angel wings so I can rock it with you guys when I see you next.<br />
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Love,<br />
JettJett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com0tag:blogger.com,1999:blog-6932186888465809900.post-74345660899103214272012-12-07T21:38:00.002-08:002012-12-07T21:38:17.442-08:00Another Angel gets his wingsThis past week one of my angel baby friends was able to get his wings. His job here is finally done and he is now able to explore the full potential of what his frail body couldn't do here on earth. Rudy also has PCH, just like me. He is about 9 months older than me, and just as handsome. He has an awesome family that loved him just as much as my mommy and daddy do. Luckily Rudy left with a smile on his face as his mom was holding him. I know he is now running, jumping, laughing and having a good time, and I am so happy for him. We will miss you buddy!<br />
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Rudy, I never personally met you before your time, but now I get to play with you whenever I'm asleep and all my other angels come to play. Even though you live really far away and I didn't meet you in person, I feel like I know you. Remember, you sent me those awesome British lights. They are sooo cool, and I still play with them almost every day. Your mommy and daddy have inspired my M&D and helped motivate them when I was really hard to take care of. We are praying for your family. I'm so glad that we can be buddies for ever. Save me a pair of angel wings so we can hang out whenever I see you next.Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com0tag:blogger.com,1999:blog-6932186888465809900.post-26438749792783427802012-12-04T12:28:00.000-08:002012-12-04T12:28:38.283-08:00Birthdays are awesomeHey everyone guess what??? I turned 1 year old this last weekend. This was kind of a big deal because no one really knew if I would make it to this point or not. (duh… I knew it wouldn't be a problem, I wish they would listen to me) I had the COOLEST party ever with all my friends out in Omaha. On top of that I got to share my birthday with friends across the entire country. Here in Omaha we lit off over 150 chinese prayer lanterns (they are the cool sky lights that you see in my favorite movie Tangled) and a lot of prayers were said for all my other angel baby friends. Another 150 lanterns were lit off from California to New York. Mom says that all of our prayers that were said while lanterns were being lit will be felt by people all over during this Christmas season. The lanterns were soooo cool, these pictures don't do them justice. As far as you could see, there were lanterns floating around. I LOVE to look at lights, so I really loved this. One of the coolest things though, is that if you drove 1 mile away from where we live, it was so foggy you couldn't see more than a few hundred feet. My angels knew that this was important, and made it clear just around my house. Thanks! <br />
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After that, a lot of people came over and ate donuts and drank hot chocolate with me. I got to meet sooooo many awesome people as well as hang out with some friends I haven't seen in a while (like both grandparents that came out for the party). And guess what, I ate real food for the first time ever. Daddy let me lick this really yummy black stuff off of a donut, and I loved it. Then he rubbed in all over my face and I got to try and lick it off. <br />
I had so much fun getting all the attention. Everyone wanted to hold me and say hi. I don't think I have ever been that happy. It was so much fun, I didn't even feel any pain or have any problems during the entire party. I am going to post a few pictures, but I'm trying to round up some more, so stay tuned and I'll post more.<br />
Also, I have been traveling around the last month and will tell you all about my recent travels soon.<br />
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Mommy and Daddy decided to light off these lanterns to help all of my angel friends, and others in need. The lanterns are called "chinese wishing lanterns" and you are supposed to say a prayer or make a wish as you light them off. So many people have prayed for me over the last year that they decided there would be no better way to kick off the chrismas season by directing our prayers towards those in need.</div>
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If anyone else has pictures of lighting your lanterns we would love to see them. Please send them to me at fighterjettboseman@gmail.com.Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com1tag:blogger.com,1999:blog-6932186888465809900.post-40498872076370589322012-11-22T18:37:00.003-08:002012-11-22T19:18:59.928-08:00ThanksgivingHey guys! Sorry I haven't been updating a lot lately. Dad has been really really busy at school and he takes his computer with him, so I don't get much computer time these days. Based on the talk around my house, and some sort of disgusting eating ritual that my parents participated in, I think today is a special day. I heard mommy and daddy mention "Thanksgiving". I'm not exactly sure what that means, but it reminded me that I am thankful for a lot of things… even though some days I feel that I have been dealt a rough hand of cards. <br />
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Obviously I owe a shout out to my mommy. As you can imagine I can be kind of a pain in the butt to take care of sometimes, and she does what ever she need to do to get the job done. She has taken the time to research my condition, educate the many doctors that have never heard of it, and propose solutions that are so brilliant the doctors can't think of anything better… and her solutions usually work. She spends hours with me trying to teach me the things that normal kids will inherently know, like track an object with my eyes, hold my head up, lay on my tummy, ride in a car seat, and hold her finger. She has miraculously taught me more than I ever thought I would do in my 1st year… although its not very much, its more than expected of me. She spends almost every waking hour with me. Even though I'm nearly impossible to travel with, she encourages me, almost daily, to get out of my comfort zone and experience something new. I know that I'm really hard to take care of, and I make her cry a lot; but I am so so lucky that she is my mommy. I know she loves me, but I love her back even more!!!<br />
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I am thankful for so many cool friends. I don't know anyone else that has traveled to more than 10% of the countries in the world in their 1st year of life. I have no clue the number of households that I was able to participate in this "thanksgiving dinner" you talk about, but I have been told by a few people that they wore my shirt to eat turkey today. On top of traveling I've had the opportunity to go flying, sing karaoke, play with bands, learn to farm, watch sporting events, and so many other cool activities that I wouldn't have the opportunity to do otherwise. In addition I have received multiple gifts of service or thoughtful items that I now treasure. I can't imagine life without so many people supporting me.<br />
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I am really thankful for the little things. I've been getting pretty bored lately, ya know just laying on the floor all day. I love looking at the ceiling fan, but you can only stare at that for so many months. Earlier this week though, something finally clicked in my brain that allows me to see. Well I could always kind of see, but now I somewhat understand when I'm looking at something interesting. Like my mobile thats hanging in my crib. Its always been there, since the day I came home from the hospital, but I never noticed it. Now when daddy or mommy turns it on, its the coolest thing in the world. Here is a video of me watching my mobile.<br />
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<iframe allowfullscreen="allowfullscreen" frameborder="0" height="315" src="http://www.youtube.com/embed/N8DwvJLQ_Co" width="420"></iframe>
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I'm soooooo excited that I made it to my 1st birthday. I'm really excited to see all my friends that are coming to my party. I know that both of my grandparents are flying in for the festivities, and its been a really long time since I've seen them. I think mommy has a really fun party planned and I can't wait until it happens.<br />
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Lastly, I am super thankful for my nurses. I possibly have the best crew of nurses in Nebraska. They come to my house at nighttime and hang out with me. When I wake up coughing or with tummy pain or even needing to be sucked out, they are happy to help me. They usually know what I want without me even asking. I'm so happy they can come over at night, because if mommy and daddy had to play with me at night too, I'd be really bored. They aren't very fun when I want to play at night. And whenever I play with them at night, they really aren't any fun the next day either. Thanks nurses I love you guys.Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com0tag:blogger.com,1999:blog-6932186888465809900.post-24238143441673460092012-11-12T14:10:00.001-08:002012-11-12T14:11:06.982-08:00No shave NovemberI just wanted to let every one know that I support no shave November. Also, my birthday is coming up in a few weeks. Whoa, how am I almost 1 already. I have done so much in 1 year thanks to all my amazing friends.<br />
<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhy34oHiNHnhCZtJkE-_s0HEbvZIRrx9aisfbcXACQCHtPNxAkfyrSN3C4qWi_OMEIfhlFgHpTG06yChyphenhyphenZ47RnfQ-j1HZWNcqlPBAyjgxEzisE61EVRKRFgW5qXoBWE0qjGlP6rIFYv_Pk/s640/blogger-image--1389181411.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhy34oHiNHnhCZtJkE-_s0HEbvZIRrx9aisfbcXACQCHtPNxAkfyrSN3C4qWi_OMEIfhlFgHpTG06yChyphenhyphenZ47RnfQ-j1HZWNcqlPBAyjgxEzisE61EVRKRFgW5qXoBWE0qjGlP6rIFYv_Pk/s640/blogger-image--1389181411.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSMfgeRywoosu4YPQqDUBU7zTztUVcdELKJEdHQqkeGOmezNDqXzDiLvbOKuX7eKeb9iuHzhmpTEB3e3uUwPUTe4YVDtvnneRlfbySdbh-vphvnU7ziYLKgVfCMTq_zakWrGiTw7prTv0/s640/blogger-image-2031644695.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSMfgeRywoosu4YPQqDUBU7zTztUVcdELKJEdHQqkeGOmezNDqXzDiLvbOKuX7eKeb9iuHzhmpTEB3e3uUwPUTe4YVDtvnneRlfbySdbh-vphvnU7ziYLKgVfCMTq_zakWrGiTw7prTv0/s640/blogger-image-2031644695.jpg" /></a></div>Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com1tag:blogger.com,1999:blog-6932186888465809900.post-27828781599820721012012-10-29T08:32:00.001-07:002012-10-30T18:08:03.167-07:00My October TRAVELS<div style="text-align: center;">
<span class="Apple-style-span" style="font-size: x-large;">I traveled to a lot of fun places this month and got to participate in some amazing outdoor adventures. </span></div>
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<span class="Apple-style-span" style="font-size: x-large;">Thank you to all of my friends who took me with you. Enjoy the slide show!!</span></div>
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<span class="Apple-style-span" style="font-size: x-large;"><a href="https://picasaweb.google.com/105674017430292099211/JettOctoberTravelingPics" target="_blank">October Travels Slide Show</a></span></div>
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<span class="Apple-style-span" style="font-size: x-large;">Below are some pictures that my mommy took of me this month. I'm getting bigger!</span><br />
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Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com0tag:blogger.com,1999:blog-6932186888465809900.post-78641539943687670602012-10-17T12:28:00.000-07:002012-10-17T12:28:26.174-07:00A Couple Thank You Notes<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: 'Apple Casual';"><span style="font-size: large;">Dear
RUN DISNEY,<o:p></o:p></span></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-family: 'Apple Casual';"><span style="font-size: large;">Thank
you for making it possible for me to participate in your races this year! Inside this little body of mine is a boy who
wants to run really fast. Although I may
not be able to walk or run during this lifetime, I am grateful for people like
you who take the time to make sure that I am part of such events.<o:p></o:p></span></span></div>
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<br /></div>
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<span style="font-family: 'Apple Casual';"><span style="font-size: large;">Friends,
neighbors, and strangers who see my story and do something to help out
continually strengthen my mommy and daddy.
We are so incredibly grateful and humbled by the good people in this
world! <o:p></o:p></span></span></div>
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<br /></div>
<div class="MsoNormal">
<span style="font-family: 'Apple Casual';"><span style="font-size: large;">Thank
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<br /></div>
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<span style="font-family: 'Apple Casual';"><span style="font-size: large;"><br /></span></span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4Zq5i7Ej-UX1C3ps86qJHnHwjft3eUBNsiOU9tnbowis9EPG2i8pOQ0VWeAmdU9ZPOx5G_4e9DjjZjmv5kqeMlfN5sS8UopYP9uOEbOuBmI1-9N3DQg8WaRtLHWuZqDJhzmunBNJLmwU/s1600/jasonbecky.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="font-size: large;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4Zq5i7Ej-UX1C3ps86qJHnHwjft3eUBNsiOU9tnbowis9EPG2i8pOQ0VWeAmdU9ZPOx5G_4e9DjjZjmv5kqeMlfN5sS8UopYP9uOEbOuBmI1-9N3DQg8WaRtLHWuZqDJhzmunBNJLmwU/s320/jasonbecky.png" width="320" /></span></a></div>
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<div class="separator" style="clear: both; text-align: left;">
<span style="font-family: Georgia, Times New Roman, serif; font-size: large;">Dear Jason and Becky,</span></div>
<div class="separator" style="clear: both; text-align: left;">
<span style="font-size: large;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
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<!--StartFragment-->
</div>
<div class="MsoNormal" style="text-align: left;">
<span style="font-family: 'Apple Casual';"><span style="font-size: large;">THANK
YOU for taking me with you all over the world!
Here’s a picture of me cuddling the koala you sent…I tried to get a
picture of the Belgian chocolates, but my mom already ate them all. <o:p></o:p></span></span></div>
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<br /></div>
<div class="MsoNormal" style="text-align: left;">
<span style="font-family: 'Apple Casual';"><span style="font-size: large;">You
two are the BEST (adopted) aunt and uncle anyone could ask for. My mommy and daddy really think the world of
you both. We can’t wait to see you at
Christmas!<o:p></o:p></span></span></div>
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<br /></div>
<div class="MsoNormal" style="text-align: left;">
<span style="font-family: 'Apple Casual';"><span style="font-size: large;">Love,</span></span></div>
<div class="MsoNormal" style="text-align: left;">
<span style="font-family: 'Apple Casual'; text-align: center;"><span style="font-size: large;"> Jett</span></span></div>
<!--EndFragment--><br />
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<!--EndFragment-->Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com3tag:blogger.com,1999:blog-6932186888465809900.post-42875806800726342782012-10-06T18:02:00.002-07:002012-10-06T18:02:16.827-07:00Extreme Sports<span style="font-family: Georgia, Times New Roman, serif;">You probably could guess this, but did you know that I'm into extreme sports? Besides running marathons and riding bikes (with all of you!), my mommy and I have done some stuff on our own this week.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">We visited Vala's Pumpkin Patch in Gretna, NE. It is the Disneyland of all pumpkin patches! <span style="background-color: white; color: #222222; line-height: 24px;">It was amazing...everything from humongous jumping pillows to go-carts to the yummiest kettle corn on the planet.</span></span><br />
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<span style="color: #222222; font-family: Georgia, Times New Roman, serif;"><span style="line-height: 24px;">I felt the sun and wind on my face as my mommy and I drove the go-carts and jumped on the trampolines. The only time I cried was when my mommy made me play in a "sand" box filled with corn kernels. No way, mom...that kind of stuff is for babies! </span></span><br />
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<span style="color: #222222; font-family: Georgia, Times New Roman, serif;"><span style="line-height: 24px;">I hope you enjoy my adventures, because I sure did.</span></span></div>
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<span style="color: #222222; font-family: Georgia, Times New Roman, serif;"><span style="line-height: 24px;">I'll have a lot more updates coming in the next few days. You all have taken me to some pretty amazing places. Have a nice day everyone! Always remember to "feel the wind in your hair" and to look for the good in everything.</span></span></div>
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<span style="color: #222222; font-family: Georgia, Times New Roman, serif;"><span style="line-height: 24px;">Love, Jett</span></span></div>
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Okay, so maybe I can't literally "feel the wind in my hair", but you know what I mean!</div>
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I'm still working on growing some hair people.</div>
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Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com1tag:blogger.com,1999:blog-6932186888465809900.post-51708683096974893482012-09-30T12:02:00.002-07:002012-09-30T12:02:13.759-07:00Jett POWER!!There is a special group of people that I want to tell you about. The Highmark Group out of Draper, UT is a landscaping contracting company who heard my story and decided to help me and my family! Every year, the employees and management all participate in an "Annual Ride (your bike) to Work" day. They pick a special person to sponsor for this event. And guess what??<br />
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They chose ME!!<br />
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Even though my parents and I now live in Omaha, Nebraska…they still decided that I was going to be their special buddy. Weeks in advance, employees gathered donations. They even made bike jerseys with my logo on them. Underneath the logo read, "JETT POWER!" I bet this helped them ride really fast.<br />
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My mommy and daddy weren't able to attend because we live so far away. And let's be honest, I may not be the easiest baby to travel with! M & D were really sad that they couldn't take me to this big event. However, Aunt Amy (daddy's sister) and Aunt Tiffany (mommy's sister) were able to go. They got to tell everyone my story and tell all of the employees how grateful our family is for their support. Mommy and I were able to "kind of" be there on Skype. It was so amazing to see so many people (many of which, we have never had the privilege of meeting) wearing my shirt and showing me their Jett Power!<br />
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All in all, the employees of the Highmark Group rode 283 miles and raised $1200 for me. Wow!<br />
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THANK YOU THANK YOU THANK YOU! Our family is strengthened every day by those who have participated in events like this. YOU are the ones who give us JETT POWER!!<br />
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<br />Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com0tag:blogger.com,1999:blog-6932186888465809900.post-87028629951242174672012-09-23T12:31:00.000-07:002012-09-23T12:31:00.147-07:0010% of the worldWith the help of all my wonderful friends I have officially traveled 10%
of the world. What an amazing feat to have accomplished so quickly.
It feels like I have traveled much more than 10%, but I guess the world
has a lot of places to see. Thanks again to all of my friends that have
made this happen.<br />
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<br />Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com0tag:blogger.com,1999:blog-6932186888465809900.post-25225205955750595412012-09-11T21:54:00.001-07:002012-09-12T16:33:42.463-07:00The ZOO, an EEG, and lots of fun travels!Hi Everyone!<br />
I hope you are all having a good week…my momma has not been good about getting this blog post up as fast as I would like. I have TRIED and TRIED to tell her. Finally, she got around to it today and I am excited to tell you about my past week.<br />
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Last Tuesday, a nice lady from Neuroquest came to my house and put these crazy colored strings all over my head. I was not too happy about it. She had to super glue 24 of them to my head. My mommy told me that the doctors are trying to figure my brain out…they want to know FOR SURE if I have seizures or not. Sometimes I do some crazy stuff like twitch or roll my eyes back. I like to keep everyone on their toes. The EEG lasted for 48 hours and I had to stay in front of a video camera the WHOLE time. Man, was that rough! I couldn't go outside or anything (but my mom may have snuck me outside a couple times).<br />
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My mommy and daddy will find out the results from this EEG in a couple of weeks. They are, at least, hoping that the brain doctors will be able to prescribe some medicine that will help me be more comfortable. I would LOVE that and I hope the doctors are able to do it!<br />
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Once the EEG was complete, it took my mommy two hours to get these strings off of my head! I was a very good boy and only cried a little bit and, man, was I HAPPY to have them off. We went straight outside so I could feel the wind run through my hair again. I closed my eyes and enjoyed every second of it!<br />
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Just a few days ago, my mommy and daddy took me to the Omaha Zoo. I loved being outside in the beautiful, sunny weather. We even went to the petting zoo…and I touched a goat! Before we knew it, however, that crazy goat was trying to eat my feeding tube. Don't worry, I laid down the smack, and gave that goat a kick with my strong legs!<br />
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And lastly, my TRAVELS! I have made so many wonderful friends. I think I may be the most popular baby ever…and the luckiest. You, my friends, are wonderful people. You keep me and my parents going! We have become so strong because of your faith in us. Enjoy the following video of my September travels.<br />
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Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com0tag:blogger.com,1999:blog-6932186888465809900.post-33537383892222454042012-09-08T19:55:00.002-07:002012-09-08T19:55:28.037-07:00Growing Up!!!Hey Guys,<br />
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I'm just finishing up my latest travel slide show and it will hopefully be up this weekend, but in the mean time I just wanted to show everyone how Big I am getting... I mean seriously, look how long I am. I may be really skinny, but I make up for it in length. I'm so big that I have grown out of the little device that mommy puts me in and walks around with, I think its called a baby bjorn. I'm going prove a lot of people wrong and be the first PCH basketball player...<br />
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I've been doing pretty good lately. Mommy has been brave with trying to take me out during the day. I don't really like my new lay flat car seat because it is too small, but we both deal with it and we're able to get out every few days. <br />
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Oh, Guess what??? M&D took me to an airshow and on a boat over the last couple weeks... and I LOVED IT!!! M&D usually take me to the nurse when they want to go somewhere fun (that always makes me feel bad) but last week they decided to start taking me along. It was soooo cool to see the airplanes. I always hear daddy talk about how cool they are, and I see them all over my room, but I had no idea that they were so awesome in real life. They went really fast, made loud noises, went upside down, and looked really cool. Then our friends invited us to go wakeboarding. M&D were really nervous to take me on a boat, but after I had so much fun at the airshow they decided to try it out. Well... It was also awesome. The boat vibrated just right that it made my tummy feel really relaxed. Then the wind was blowing ever so slightly, so I got really sleepy eyes and took a nap. It was so nice to soak up some rays (thats what you say when you're in the sun right?) with mommy, daddy and their friends. (Thanks Kim Bowman)<br />
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Lastly, I want to just give you a really quick hint at something that happened yesterday. I'll tell you more about it when I get the pictures, but I'm so excited I have to say something. The Highmark Group, a landscaping business back home in Utah, held their annual work party. They are a VERY nice company that does a lot of good things. One of them is going to India to help build homes as a service. A couple months ago I showed you a picture of their WHOLE team that took me to India with them. Anyway, Aaron, the CEO of this amazing company believes that their company parties should benefit a good cause. There will be many more details to come, but yesterday they all rode their bikes to work with Me on their hearts. Although I think I'm perfectly normal, I know Mommy and Daddy were in tears about this all day yesterday, so I'm pretty sure the thoughtfulness struck a chord in them.<br />
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Stay tuned for some more pictures in the next few days.Jett Powered Foundationhttp://www.blogger.com/profile/00487372775516469427noreply@blogger.com2