Monday, November 12, 2012
No shave November
I just wanted to let every one know that I support no shave November. Also, my birthday is coming up in a few weeks. Whoa, how am I almost 1 already. I have done so much in 1 year thanks to all my amazing friends.
Monday, October 29, 2012
My October TRAVELS
I traveled to a lot of fun places this month and got to participate in some amazing outdoor adventures.
Thank you to all of my friends who took me with you. Enjoy the slide show!!
Below are some pictures that my mommy took of me this month. I'm getting bigger!
Wednesday, October 17, 2012
A Couple Thank You Notes
Dear
RUN DISNEY,
Thank
you for making it possible for me to participate in your races this year! Inside this little body of mine is a boy who
wants to run really fast. Although I may
not be able to walk or run during this lifetime, I am grateful for people like
you who take the time to make sure that I am part of such events.
Friends,
neighbors, and strangers who see my story and do something to help out
continually strengthen my mommy and daddy.
We are so incredibly grateful and humbled by the good people in this
world!
Thank
you from the bottom of my big heart!!
Dear Jason and Becky,
THANK
YOU for taking me with you all over the world!
Here’s a picture of me cuddling the koala you sent…I tried to get a
picture of the Belgian chocolates, but my mom already ate them all.
You
two are the BEST (adopted) aunt and uncle anyone could ask for. My mommy and daddy really think the world of
you both. We can’t wait to see you at
Christmas!
Love,
Jett
Saturday, October 6, 2012
Extreme Sports
You probably could guess this, but did you know that I'm into extreme sports? Besides running marathons and riding bikes (with all of you!), my mommy and I have done some stuff on our own this week.
We visited Vala's Pumpkin Patch in Gretna, NE. It is the Disneyland of all pumpkin patches! It was amazing...everything from humongous jumping pillows to go-carts to the yummiest kettle corn on the planet.
I felt the sun and wind on my face as my mommy and I drove the go-carts and jumped on the trampolines. The only time I cried was when my mommy made me play in a "sand" box filled with corn kernels. No way, mom...that kind of stuff is for babies!
We visited Vala's Pumpkin Patch in Gretna, NE. It is the Disneyland of all pumpkin patches! It was amazing...everything from humongous jumping pillows to go-carts to the yummiest kettle corn on the planet.
I felt the sun and wind on my face as my mommy and I drove the go-carts and jumped on the trampolines. The only time I cried was when my mommy made me play in a "sand" box filled with corn kernels. No way, mom...that kind of stuff is for babies!
I hope you enjoy my adventures, because I sure did.
I'll have a lot more updates coming in the next few days. You all have taken me to some pretty amazing places. Have a nice day everyone! Always remember to "feel the wind in your hair" and to look for the good in everything.
Love, Jett
Okay, so maybe I can't literally "feel the wind in my hair", but you know what I mean!
I'm still working on growing some hair people.
Sunday, September 30, 2012
Jett POWER!!
There is a special group of people that I want to tell you about. The Highmark Group out of Draper, UT is a landscaping contracting company who heard my story and decided to help me and my family! Every year, the employees and management all participate in an "Annual Ride (your bike) to Work" day. They pick a special person to sponsor for this event. And guess what??
They chose ME!!
Even though my parents and I now live in Omaha, Nebraska…they still decided that I was going to be their special buddy. Weeks in advance, employees gathered donations. They even made bike jerseys with my logo on them. Underneath the logo read, "JETT POWER!" I bet this helped them ride really fast.
My mommy and daddy weren't able to attend because we live so far away. And let's be honest, I may not be the easiest baby to travel with! M & D were really sad that they couldn't take me to this big event. However, Aunt Amy (daddy's sister) and Aunt Tiffany (mommy's sister) were able to go. They got to tell everyone my story and tell all of the employees how grateful our family is for their support. Mommy and I were able to "kind of" be there on Skype. It was so amazing to see so many people (many of which, we have never had the privilege of meeting) wearing my shirt and showing me their Jett Power!
All in all, the employees of the Highmark Group rode 283 miles and raised $1200 for me. Wow!
THANK YOU THANK YOU THANK YOU! Our family is strengthened every day by those who have participated in events like this. YOU are the ones who give us JETT POWER!!
They chose ME!!
Even though my parents and I now live in Omaha, Nebraska…they still decided that I was going to be their special buddy. Weeks in advance, employees gathered donations. They even made bike jerseys with my logo on them. Underneath the logo read, "JETT POWER!" I bet this helped them ride really fast.
My mommy and daddy weren't able to attend because we live so far away. And let's be honest, I may not be the easiest baby to travel with! M & D were really sad that they couldn't take me to this big event. However, Aunt Amy (daddy's sister) and Aunt Tiffany (mommy's sister) were able to go. They got to tell everyone my story and tell all of the employees how grateful our family is for their support. Mommy and I were able to "kind of" be there on Skype. It was so amazing to see so many people (many of which, we have never had the privilege of meeting) wearing my shirt and showing me their Jett Power!
All in all, the employees of the Highmark Group rode 283 miles and raised $1200 for me. Wow!
THANK YOU THANK YOU THANK YOU! Our family is strengthened every day by those who have participated in events like this. YOU are the ones who give us JETT POWER!!
Sunday, September 23, 2012
10% of the world
With the help of all my wonderful friends I have officially traveled 10%
of the world. What an amazing feat to have accomplished so quickly.
It feels like I have traveled much more than 10%, but I guess the world
has a lot of places to see. Thanks again to all of my friends that have
made this happen.
Tuesday, September 11, 2012
The ZOO, an EEG, and lots of fun travels!
Hi Everyone!
I hope you are all having a good week…my momma has not been good about getting this blog post up as fast as I would like. I have TRIED and TRIED to tell her. Finally, she got around to it today and I am excited to tell you about my past week.
Last Tuesday, a nice lady from Neuroquest came to my house and put these crazy colored strings all over my head. I was not too happy about it. She had to super glue 24 of them to my head. My mommy told me that the doctors are trying to figure my brain out…they want to know FOR SURE if I have seizures or not. Sometimes I do some crazy stuff like twitch or roll my eyes back. I like to keep everyone on their toes. The EEG lasted for 48 hours and I had to stay in front of a video camera the WHOLE time. Man, was that rough! I couldn't go outside or anything (but my mom may have snuck me outside a couple times).
My mommy and daddy will find out the results from this EEG in a couple of weeks. They are, at least, hoping that the brain doctors will be able to prescribe some medicine that will help me be more comfortable. I would LOVE that and I hope the doctors are able to do it!
Once the EEG was complete, it took my mommy two hours to get these strings off of my head! I was a very good boy and only cried a little bit and, man, was I HAPPY to have them off. We went straight outside so I could feel the wind run through my hair again. I closed my eyes and enjoyed every second of it!
Just a few days ago, my mommy and daddy took me to the Omaha Zoo. I loved being outside in the beautiful, sunny weather. We even went to the petting zoo…and I touched a goat! Before we knew it, however, that crazy goat was trying to eat my feeding tube. Don't worry, I laid down the smack, and gave that goat a kick with my strong legs!
And lastly, my TRAVELS! I have made so many wonderful friends. I think I may be the most popular baby ever…and the luckiest. You, my friends, are wonderful people. You keep me and my parents going! We have become so strong because of your faith in us. Enjoy the following video of my September travels.
I hope you are all having a good week…my momma has not been good about getting this blog post up as fast as I would like. I have TRIED and TRIED to tell her. Finally, she got around to it today and I am excited to tell you about my past week.
Last Tuesday, a nice lady from Neuroquest came to my house and put these crazy colored strings all over my head. I was not too happy about it. She had to super glue 24 of them to my head. My mommy told me that the doctors are trying to figure my brain out…they want to know FOR SURE if I have seizures or not. Sometimes I do some crazy stuff like twitch or roll my eyes back. I like to keep everyone on their toes. The EEG lasted for 48 hours and I had to stay in front of a video camera the WHOLE time. Man, was that rough! I couldn't go outside or anything (but my mom may have snuck me outside a couple times).
My mommy and daddy will find out the results from this EEG in a couple of weeks. They are, at least, hoping that the brain doctors will be able to prescribe some medicine that will help me be more comfortable. I would LOVE that and I hope the doctors are able to do it!
Once the EEG was complete, it took my mommy two hours to get these strings off of my head! I was a very good boy and only cried a little bit and, man, was I HAPPY to have them off. We went straight outside so I could feel the wind run through my hair again. I closed my eyes and enjoyed every second of it!
Just a few days ago, my mommy and daddy took me to the Omaha Zoo. I loved being outside in the beautiful, sunny weather. We even went to the petting zoo…and I touched a goat! Before we knew it, however, that crazy goat was trying to eat my feeding tube. Don't worry, I laid down the smack, and gave that goat a kick with my strong legs!
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