Saturday, February 23, 2013

Today was "SNOW" much FUN

Alright everyone, can you keep a secret?  Don't tell my grandmas, okay?  They would get pretty mad at mommy and daddy if they knew that I went SLEDDING today!!  It was my first time ever and I think I loved it so much that we better go tomorrow.

Lately, my brain has been telling my body to move and wiggle A LOT.  This is called CHOREA and I don't like it at all.  In fact, when my body starts wiggling so much, I cannot focus very well and get really stressed.  Well, guess what the cure is?  SLEDDING.  Yup, you guessed it folks.  Mommy and Daddy have been really good at distracting me lately from all of my wiggles.  They toss me up in the air, swing me to and fro, and bounce me up and down on a big exercise ball.

 Since Omaha has received so much snow, M & D just knew that I would be up for some more adventure today.  So when my wiggles started, Daddy bundled me up in my snowsuit and away we went!  We climbed the largest mountain I have ever seen.  Once we got to the top, you could see for miles!  Daddy cuddled me into his chest as we got prepared to go down the hill on our sled.  He was laughing and it made me so happy.  Before you know it, we were flying so fast down the hill that not even Kusaba (my doggie) could catch up with us.  Snow was spraying up into the air and the breeze was so cold, but it felt so good.  Daddy could tell that I wanted to go again so away we went!  This time, Mommy came on our sled.  She was a nervous wreck, but I told her to not be such a sissy pants.  We had such a fun time zooming down that hill.  I think my ear's are still ringing from Mommy screaming so much.

Tuesday, February 12, 2013

On the mend... Kind of

Hey guys, after 2 months of being sick I am finally starting to feel a little bit better.  I have some other issues going on right now, but at least I'm over the RSV, Flu, Bronchiolitis, ear infection, hand/foot/mouth, breakthrough chicken pox, and C-diff! (Wow... that was alot to type for a little guy).  I have been off of oxygen for a few weeks now and made improvements as far as respiratory issues go, but I've been fighting a little disease called Riga-Fede lately.  One of the things that I have always done (because of my brain problems) is stick out my tongue.  I can't help it, it has a mind of its own!!!  This was never a problem until I started to get my teeth in.  Since I never eat with my mouth my teeth are just as sharp as the day they came in.  You can probably see where I'm going with this...  The Dentist told us that with a case as bad and unique as mine, the only option is to remove my 4 lower teeth.  Daddy and mommy talked with the Dr. for a long time to try and come up with a different idea, but the Doc didn't like any of their ideas.  So unless something changes, I have to get my teeth pulled out on Feb. 26th.  I have to go under sleepy medicine again to have it done.  I don't think its going to be a big deal, but mommy and daddy are pretty worried about it.

Anyway, on a much more exciting note I have some pictures of my travels.  Luckily I've been getting around even when I have been sick.

Phaedra Musselman took me on some really really special adventures.  Here are her words about our travels. "I can't really tell where I went, but let's just say that I went to an area with a ton of sand/dust, filled with landmines, flying this lovely helicopter shown behind me picking up people and soldiers who needed help."  Thanks soooo much Phaedra, I'm am honored that I could accompany you in such an incredible cause.  

I found some pictures on Facebook that I didn't realize were there.  Sorry to my friends that took me with you and I didn't post on the blog.  Hopefully I can get all of the pictures up here. 

Some of my mommy and daddies favorites...Sydne & Daryl Jacques at the "Great Pyramid" in Cancun Mexico

DJ Card and Hearing For Life (in Logan Utah) entered a softball tournament in Jett Jersey's.
Too bad the tourney got canceled,  I was ready for my first "W"!

The Lloyds's- I can' even tell you how much they have done with me.  They have taken me all over the world… literally.  Becky (the cute redhead below) often travels for her work.  She has many Jett shirts for different occasions.  If you browse through my blog you will see how many amazing places I have already been with them.  Here are a few that slipped through the cracks.
Becky took me to the Redhead days in Breda, Netherlands

This was a worldwide event… Holy cow, look how many Red heads are there!!!

Becky took me to Sydney

The entire Lloyd family took me with them to Alaska