Friday, December 28, 2012

Christmas travels around the world

I've been getting so behind.  With all of the fun that has been going on I haven't updated my travels lately. For my latest travels; Mommy and Daddy were brave enough to take me away from home.  We are in Utah right now visiting all of my relatives.  Its really good to see everyone, but I'm not sure I like being away from home very much.  I'm kind of used to my crib, my house, my rules, and having M&D to myself and its kind of weird being away from all of that.

We have only been here a couple of days, yet I have already had a couple of scares.  The scariest was when my feeding tube accidentally got pulled out.  My feeding tube goes through a hole in my stomach then all the way to my intestines.  It is supposed to be a semi-permanent thing because I have to take sleepy medicine and have surgery to get it replaced.  I don't know how it got pulled out because there is a little balloon that is supposed to hold it in my tummy.  I guess the balloon must have gotten ripped out of my tummy, because it hurt really really bad... then my tummy started bleeding pretty bad.

Somehow M&D figured out a way to get my tube back in and I was good to go.  Right now, M & D are watching me closely.  They are making sure that I don't get sick from my feeds or that blood doesn't come out of my tummy.

I am so happy that I didn't have to go to the hospital.  My M & D might be rookie doctors, but they fixed me!  I am back to my normal self and ready for some more travel!!

 First off, did you know that I got to visit Santa in the North Pole?  Well I did...AND I got to help out in the elf workshop.  If you don't believe me, look at the pictures below!  A lot of my friends and family put this Christmas tree together for the Utah Festival of Trees.  Isn't it beautiful!?  I am happy to report that this tree sold for a lot of money.  The money will go toward helping other kids like me at Primary Children's Hospital. 

Thanks for all of the FUN adventures!!

Saturday, December 22, 2012

Heaven is in need of some strong spirits right now!

I wish I wasn't posting this right now.  I lost my friend Rudy just last week, and this is way to soon to lose another angel baby friend.  My friend Isabel retrieved her Angel wings earlier this week.  She was only a couple months older than me.  She joined the group of angel babies that comes to hang out with me every night.  I wonder what is going on up in heaven, that they need so many strong soldiers to return back right now.  I know my friends are the best of the best, and whatever they are needed for up in heaven is more important than their mission here.

Isabel, although I'm excited for your nightly visits, I'm sad that you had to leave your family and other loved ones so early.  I know you, Rudy, Maia and all the other PCH superstars are rocking it up in heaven.  Save me a pair of angel wings so I can rock it with you guys when I see you next.


Friday, December 7, 2012

Another Angel gets his wings

This past week one of my angel baby friends was able to get his wings.  His job here is finally done and he is now able to explore the full potential of what his frail body couldn't do here on earth.  Rudy also has PCH, just like me.  He is about 9 months older than me, and just as handsome.  He has an awesome family that loved him just as much as my mommy and daddy do.  Luckily Rudy left with a smile on his face as his mom was holding him.  I know he is now running, jumping, laughing and having a good time, and I am so happy for him.  We will miss you buddy!

Rudy, I never personally met you before your time, but now I get to play with you whenever I'm asleep and all my other angels come to play.  Even though you live really far away and I didn't meet you in person, I feel like I know you.  Remember, you sent me those awesome British lights.  They are sooo cool, and I still play with them almost every day.  Your mommy and daddy have inspired my M&D and helped motivate them when I was really hard to take care of.  We are praying for your family.  I'm so glad that we can be buddies for ever.  Save me a pair of angel wings so we can hang out whenever I see you next.

Tuesday, December 4, 2012

Birthdays are awesome

Hey everyone guess what???  I turned 1 year old this last weekend.  This was kind of a big deal because no one really knew if I would make it to this point or not. (duh… I knew it wouldn't be a problem, I wish they would listen to me)  I had the COOLEST party ever with all my friends out in Omaha.  On top of that I got to share my birthday with friends across the entire country.  Here in Omaha we lit off over 150 chinese prayer lanterns (they are the cool sky lights that you see in my favorite movie Tangled) and a lot of prayers were said for all my other angel baby friends. Another 150 lanterns were lit off from California to New York.  Mom says that all of our prayers that were said while lanterns were being lit will be felt by people all over during this Christmas season.  The lanterns were soooo cool, these pictures don't do them justice.  As far as you could see, there were lanterns floating around.  I LOVE to look at lights, so I really loved this.  One of the coolest things though, is that if you drove 1 mile away from where we live, it was so foggy you couldn't see more than a few hundred feet.  My angels knew that this was important, and made it clear just around my house.  Thanks!

After that, a lot of people came over and ate donuts and drank hot chocolate with me.  I got to meet sooooo many awesome people as well as hang out with some friends I haven't seen in a while (like both grandparents that came out for the party).  And guess what, I ate real food for the first time ever.  Daddy let me lick this really yummy black stuff off of a donut, and I loved it.  Then he rubbed in all over my face and I got to try and lick it off.
I had so much fun getting all the attention.  Everyone wanted to hold me and say hi.  I don't think I have ever been that happy.  It was so much fun, I didn't even feel any pain or have any problems during the entire party.  I am going to post a few pictures, but I'm trying to round up some more, so stay tuned and I'll post more.
Also, I have been traveling around the last month and will tell you all about my recent travels soon.

Mommy and Daddy decided to light off these lanterns to help all of my angel friends, and others in need.  The lanterns are called "chinese wishing lanterns" and you are supposed to say a prayer or make a wish as you light them off.  So many people have prayed for me over the last year that they decided there would be no better way to kick off the chrismas season by directing our prayers towards those in need.

If anyone else has pictures of lighting your lanterns we would love to see them.  Please send them to me at