Sunday, November 10, 2013

Where do I start


Wow, I had such a fun summer.  I never visited the hospital once (I need to learn how to knock on wood) and have felt really good all summer.  Now that its starting to get cold here in Omaha I'm a little worried that I may get sick, but hopefully I won't ever get as sick as I did last winter.  A year ago from now, I could have never imagined that life could be so fun.  I'm so happy that I am able to grow with all my friends (you guys) so you can see how awesome my life is!
I was soooo busy the last few months that I never even got a chance to come on here and tell all you guys about it.  I actually got to travel a little bit myself… turns out its really fun!!!  I went on 2 REALLY long car rides and tried to behave so M & D would want to take me on more.  Since I don't even know where to start, I'll just jump right in.

Lake of the Ozarks-
My very first road trip.  It was about a 5 hour drive from home, but luckily I had my new comfortable car seat and was happy for most of the drive.  I went down there with some of M & D friends so we could ride on a boat and watch people get towed behind it.  Some people are crazy!  Why would you want to get towed behind a moving vehicle???  I was perfectly happy just sitting in the boat watching, but then I got a to go swimming and that was AWESOME, I loved it.
We stayed in a house right on the lake, it was sooo cool.  I want to live by a lake someday because I really like to stick my toes in the water, and hopefully I can skip rocks on the water like daddy someday.


I love being on a boat

We all got to relax and sleep a lot































My new toy-
Daddy built me a really cool new toy.  He built me a color changing LED light board that can flip down over my crib.  I love looking at lights, it helps me relax so I really LOVE this.

Hanging out with family-
I was so lucky to see so many of my grandmas, grandpas, and cousins this summer.  I never get to see my cousins, so it was really fun to play with all of them.  First, almost my entire daddy's side of the family came to Omaha for a family vacation.  I got to hang out with my cousins and aunts/uncles for an entire week.  We did so many fun things, I wish they could come back and play again.  Some of the fun things were:
- All of us kids had to complete 12 challenges together, each challenge completed we earned a golden ticket.  Once we had 12 golden tickets we all got a cool prize.  
-boating at Fremont Lake - again, crazy people that like to get towed behind a moving vehicle… I don't understand this!
-Strategic Air command museum-I love airplanes and since they canceled the air show this year this was a good substitute
- Hanging out with so many people that love and adore me was my favorite part





I'm not sure what they mean, but all the adults thought they were funny
Here are me and cousin Eddie… get it, Cousin Eddie? (Griswold- family vacation)

These shirts were the cool prizes that we earned with our golden tickets


I even earned my very own golden ticket
Next Mommies parents came to town to hang out.  I always get spoiled when they come.  




New car and carseat-
I don't think I told you about my new car/carseat that allows me to ride in the car for longer than 30 minutes.  Well I got a big boy car seat that lets me look outside of the car.  It is so much better.  I can sit semi comfortably for long periods of time.  To accommodate my new carseat and new wheelchair we had to sell the toaster car and get something bigger.  We got a nice shiny new big car that can fit all of my equipment, it is awesome.

-Weird Al concert
Daddy made sure, that given the opportunity, I wouldn't miss a Weird Al concert.  I was feeling up to it and ready for an adventure, so I joined him and his friend Kevin for a guys night out with Weird Al.  The concert was pretty cool.  Crazy lights and loud noises everywhere!  Daddy said it was normal, but there were people dressed up like space men (star wars) green aliens (yoda) Amish people, and other crazy costumes.  Daddy and Kevin said that it was more like a dungeons and dragons conference then a concert, but maybe thats why it is so entertaining to them.  Anyway, I could only handle the awesomeness for a few songs before mommy had to come pick me up.  Luckily, Daddy still let me "Meet" Weird Al by getting him to sign a Jett Powered shirt.  


Did you know that accordion used to belong to daddy?
Seriously, he sold it to Weird al!!!



Jett Powered Dance Workshop in Utah-  Shortly after Mommy and Daddy launched the Jett Powered Foundation, one of Mommy's friends contacted her about raising money for it.  Randi Carter, who Mommy used to dance with in college, wanted to set up a dance workshop in Utah.  She worked very hard putting together the schedule, recruiting professional instructors, and advertising for the event.  Mommy really wishes she could have gone to the event, but alas, she had to stay here in Omaha with me. We hear it went really well, however. The kids wore bright blue Jett t-shirts as they learned and performed various dances.  Randi was so nice to put this together and made sure to tell everyone about me!  Besides learning how to become better dancers, the kids learned to be grateful for their healthy bodies and learned that some kids, like me, aren't born with healthy bodies.  They worked hard and danced for ME that day and I could feel it.  Mommy says I smiled the whole day the workshop was going on.  Thanks so much Randi!  She successfully raised $600 for the Jett Powered Foundation.

Randi is in the middle with her two sons and is surrounded by a few of the participants and instructors
-Chicago
Since I did so awesome driving to the Ozarks earlier in the summer M & D decided they would try and take me to Chicago over Daddies fall break.  My friend Norah, who also has PCH, was going to be at her grandparents house in Chicago that week so we all wanted to go meet her and her family.  Also, M & D 's friends Jason, Becky and Harvey came out and met us there to hang out.  It was such a fun couple days.  We did so many AWESOME things.  We drove around chicago in a boat and saw all the cool HUGE buildings, we ate pizza and hot dogs, went to an old baseball field, went up a really really tall building (sears tower) and saw the entire city (my feeding tube came out and leaked all over when we were in the "skybridge", so I left a nice mess of my "food" all over the glass floor… Whoops!!!) And then I finally got to meet my lifelong buddy Norah.  She is a few months older than me, but I've always liked older women anyway, so it was no big deal.  She was cuter than I ever expected (actually M & D say we kind of look alike).  It was so fun to see someone else like me.  We laid on the floor together, played with stuff animals, she taught me how to knock down a tower of blocks,  Norah showed me her feeding tube and I shower her mine it was awesome!
This is us with Norah and her Mommy Liz

 

This is where my food tube leaked everywhere
 





Halloween-
I had a lot of fun getting dressed up for halloween.  This year I went dressed up as a garden gnome.  For halloween I went and watched daddy play flag football.  It was such an awesome night out I was happy to spend it outside.  Then later, my cool nurse Joan came to take care of me.  At first I thought a giant cat was taking care of me but then I heard her voice and knew who it was.
Joan "kitty" the nurse


I visited dad at school for the annual halloween parade.  He didn't even recognize me with my beard and eyelashes!



-Places I traveled

As always I get to travel the world with all of my great friends.  I'm slowly making progress around the world.  I think I've currently see over 15% of the entire world.  Thanks to everyone for showing me all the amazing places around the world.  Here is where I've been recently!

I got to play baseball with one of daddies friends from school

I ran the iditarod with April Gordon in Alaska


Tony Cat took me to Munich Germany.  I thought castles like that only existed
in Disney movies 
I got to go all over the South with my Grandma & Grandpa Boseman.
Here we are in Warner Robbins GA picking Cotton
We also went to South Carolina, and New Orleans
Bill took me on Vacation to moscow Russia.  Here I am at Bolshoi Theatre
which is across the street from Red Square

Here are Bill and I at the Cathedral of Christ the Savior in Moscow Russia 

I'm only 9 states short of traveling to every state in the US.  So if your going to any of the following states I'd love to go with you (I'd love to go anywhere, but would love to check these off my list)
-Delaware
-Oklahoma
-Kentucky
-New Hampshire
-Virgina
-West Virgina
-Massachusetts
-Mississippi
-Rhode Island

25 comments:

  1. Love the post. Glad to know you're doing so well and have been having so much fun!
    I have to tell you the last bit made me think of Wayne's World- when Wayne says, "Delaware. Hi. I'm in Delaware." I hope you know what I'm talking about!

    ReplyDelete
  2. Local Cash for Car is a licensed auto removal company that buys all types of used, junk, scrap, broken, and damaged vehicles for as much as up to Cash For Cars Petrie Terrace

    ReplyDelete
  3. Cash For Cars Caboolture understand how difficult car selling can be. With our processes even people with no experience can sell car and get good rates in return. Our streamlined 3-step process can help you cars for cash caboolture

    ReplyDelete
  4. Cash for Cars Ipswich pays top prices for old, damaged, scrap, accidental or unwanted SUVs, UTEs, trucks, buses, 4WDs and vans. Unlike private dealerships, we make sure that the process of getting rid of the eyesore that you own becomes less time-consumingsell my car gold coast

    ReplyDelete
  5. Give your unwanted vehicle to Car Wreckers Townsville is for people who have old cars piled up in their backyards with no correct way to dispose of them. In Australia alone, there are 500,000 end-of-life vehicles available annually. So correctly disposing of them is a very lucrative business. Cash for Cars Townsville

    ReplyDelete
  6. One of the major prompt benefits in opting for scrap car removal Sunshine Coast are the numerous incentives that come with every package. Some of them include free towing, the opportunity to get a free consultation with a car buyer representative and more. These are some of the greatest added advantages for taking up the junk removal program of the company. Furthermore, the money offered can add up to a significant amount, especially when you consider that you will need the vehicle at a later stage.car removal sunshine coast

    ReplyDelete
  7. "N JCashes, we can sell my car for cash." This is one of the many thoughts that come to an individual's mind when they are told they can sell my car for cash in Brisbane. Selling your used car is almost as easy as 1, 2, 3 - get cash now for your junk car. Let NJcashCars get rid of the stress of trying to sell your car for cash.Cash For Cars Petrie Terrace

    ReplyDelete
  8. No matter where you live, there will always be a buyers market for cars. People are always looking to sell their old vehicles, so you will always get back more cash for cars than you spent on the car. To sell your car fast, sign up with a car removal Brisbane company. If you are selling your car privately, then you can advertise on the internetCanberra Cash for Cars

    ReplyDelete
  9. It's time for you to go green and give a car donation to a local charity or car removal company in ACT. Car donations are a great way to help save our environment. Donating your car is one of the easiest ways we can help our environment. Here's how:cash for cars caboolture

    ReplyDelete
  10. Among the best bargains in Southern California, the North Coast Wreckers have been giving great service to fishing enthusiasts and sailors for more than three decades. Since their humble beginnings, the company has expanded and now offers a much wider selection of quality fishing tackle, fishing poles, reels and accessories. In fact, if you are not sure about something or need advice, you can always call them. Their friendly staff and knowledgeable staff are there to help you any way they can.North Coast Wreckers

    ReplyDelete
  11. Instant Cash, NO Hassles & FREE car removal are the leading Car Removal and Cash for Cars specialists. Removalists, including private sellers, charities, councils, businesses etc. can remove vehicles in any state, paying the best prices in cash. Whether your car is scrap, old or just unwanted; they will happily pay you top cash for it the very next dayCash for Cars Mansfield

    ReplyDelete
  12. Cash for scrap cars generally come from impounded cars, government auctions, auction returns and damaged cars. It is important to check local laws before trying to get cash for scrap cars. There are many salvage yards and dealerships that will offer cash for car sales. But be sure to do your research before purchasing any vehicle from a dealer or junk yard.car removal brisbane

    ReplyDelete
  13. If your Mitsubishi car is old or damaged, why not sell it to Mitsubishi wreckers in Brisbane for a few hundred dollars? That's right, you can sell your Mitsubishi towing damaged cars for scrap metal in this city. There are a lot of people who have junk cars like your Mitsubishi car, which is why we have Mitsubishi car wreckers in Brisbane that can pay cash immediately on the spot for you. Don't wait any longer. Call us today, and we will give your Mitsubishi car car wreckers Brisbane

    ReplyDelete
  14. We accept cash for cars regardless of the age or condition. Whether it be a dented or damaged vehicle, we will pay cash for cars. All you need to do is fill our online form and we will send you a price quote. From here you will have the freedom to choose whether or not we will accept the damaged vehicle. Damaged cars are sold as-is, no repairs will be made. cash for cars brisbanecash for scrap cars brisbane

    ReplyDelete
  15. The process of cash for cars removal is fast and easy. If you are faced with a car removal or you want to buy a new car, you should consider using click4quotes to find the best deals and the best companies to deal with. The whole process will be hassle-free and quick so that you can sit back and relax while you are browsing some of the best offers for your cash for cars. It might seem like a hard process but the benefits are great and you will be glad that you did.cash for cars removal airlie beach

    ReplyDelete
  16. If you have the cash for cars in Gold Coast, you can choose between cash for car removal and cash for car donation. Both options are great ways to get cash for your old or new car safely, securely and without hassle. You don't have to wait months or even weeks trying to sell your car privately. With cash for cars in Gold Coast, you can turn an eyesore into a treasure.cash for broken cars goldcoast

    ReplyDelete
  17. There are a number of places that buy unwanted cars for cash that can be found on the internet. Some of them offer cash for junk cars. They will pay you top dollar for any car that is deemed to be an upgrade or top of the line. They might be out to make a fast buck off of you and will probably charge you a hefty price in order to do it. If they are a reliable source, they will provide you with a good warranty so that you are covered in case anything goes wrong.we buy cars townsville

    ReplyDelete
  18. Very fruitful blog! Are you looking for the top Cash for Car Melbourne services? Don't worry! Melbourne Towing Cash For Cars is the best option is just for you.

    ReplyDelete
  19. Thank you for the article very helpful one and yet knowledgeable too. We are cash for old cars company with car removal hand to hand services which are more popular among Australia and top offers are unbeatable among us than any others.

    ReplyDelete
  20. Thanks for sharing such a nice information. We are one of the most reliable Brisbane’s Unwanted Vehicles dealer. We buy cars in Brisbane, paying little mind to their condition, mileage or model. It isn’t just about purchasing second-hand autos; we additionally give you the services of exchanging with your damaged vehicles or paying instant cash for cars toowoomba. With the claim that We Buy Vehicles exchange a wide range of vehicles. We don’t restrain ourselves to a specific sort of vehicles and are very flexible in terms of cost, and satisfaction.

    ReplyDelete
  21. Great post and very informative post. At Hashtag Car Removal, you will get fast and easy cash for cars service. We are a reliable company all over Sydney NSW that pays up to $7,999 for any scrap, junk, or unwanted cars. Our expert team will remove your 4×4, ute, SUV, vans, or trucks the very same day for FREE.
    car buyer sydney

    ReplyDelete
  22. Hello! I found your website on google and found it very useful and informative for our business and I also shared your website with my other friends also. Best Cash For Carz is a locally owned cash for cars business in Melbourne, VIC. We started this business with an aim to provide customers with a quick and efficient way to sell their vehicles without leaving their homes. We have over a decade of experience in Melbourne’s automobile market and have hired industry experts to help us along the way. We purchase a variety of junk and cash for cars melbourne and pay market competitive prices for them and remove it from your premises for FREE.

    ReplyDelete
  23. If you're looking to get rid of your unwanted vehicle, Cash for Car Removals Ipswich can help. They can remove any type of vehicle. From a junker to a classic car, you can sell it to them. They will even pick it up for free! cars for cash ipswich

    ReplyDelete
  24. Getting rid of an old vehicle is easy when you use a cash for cars Gold Coast service. They will come to you and remove your vehicle for free, and they even offer to pick up your car from the airport cash for cars gold coast

    ReplyDelete
  25. If you're just starting out in the fleet management industry, it's crucial to stay updated on the latest trends, tools, and best practices. A great place to begin is by researching platforms and communities dedicated to this field, such as fleetsworld , where you can find valuable insights, expert advice, and industry news to help guide your journey

    ReplyDelete